I haven't heard anything about him, but do post what you find out.  It could be very helpful to others to know of another good option, if it turns out well.

Here is a repost of my post in the "Tips" section of the forum:

Make sure that someone goes into that exam room with you so that you can remember and absorb all of the tons of info that the doctor will share with you. It is easy to miss something because you are so wrapped up in the actual appointment! Here are questions to ask:

1. After hearing my story, does this appear to be masto or mast cell related? If masto, which one (indolent systemic, aggressive systemic, UP, etc) Or do I sound as if I have Idiopathic Anaphylaxis?
2. What makes you think this?
3. What are my treatment options, specifically meds?
4. What meds can I take? Should I take daily meds as preventative in order to keep my condition stable and calm?
5. What if I am on those daily meds, and I start to have a rush of worse symptoms (like the beginning of an attack). Can I take an additional med, such a zyrtec if that is what I take daily? If that additional med doesn't slow down my symptoms, should I take a more fast acting med such as hydroxyzine to stop a potential attack?
6. How would I know at what point to take an additional med or a hydroxyzine? In other words, what symptoms are severe enough for me to take
action?
7. How do I know when to use an epi pen? Should I use it only if I get to the point of feeling lightheaded?
8. What types of triggers that are common to most masto people should I avoid?
9. If I know I am going into a stressful situation, and I generally react to stress, then can I take an extra H1 such as zyrtec as preventative?
10. Should I keep a food and medical diary to help determine what my triggers are?
11. Can we feel comfortable enough assuming this is what I have based on my symptoms and my good response to meds and carry on under that assumption...or do I need a bone marrow biopsy?
12. If I need a bone marrow biopsy, can you and your hematologist do it or do I have it done elsewhere? I hear that only a few places in the country
can correctly analyze the biopsy, so is your facility one of them?
13. What is the long term prognosis of what you think I have? Can I expect a normal lifespan?
14. What can I do besides taking meds to help my condition/symptoms not progress? Such, as avoidance of triggers like certain foods, heat, stress, fatigue, etc.
15. Should I always carry a couple epi pens with me? I have heard that sometime people actually need more than one at a time. How in the world would they know to use a second one?!
16. In the event that I would get really ill and need to go to an ER,. can you write a suggestion protocol note for me on your letterhead describing that I might have this condition and what treatment they should consider using if it appears that I am having a masto attack? Sometimes ER docs or paramedics don't believe mast people and don't take us seriously otherwise.
17. If I don't appear to have masto or any mast cell disease, what could I have and are there other types of specialists that I should see?
18. What type of disease is masto? Is it a genetic mutation as I have heard and can it be inherited by my children?
19. In the event that I have a problem, can I contact you? If so, do I do this by email, telephone, etc? I am thinking in the event that my local doctor cannot handle my immediate problem...let's say I get sick and am put on antibiotic that triggers my masto. My doctor may have no idea what antibiotic to substitute. Or maybe my symptoms get worse and I feel that I need a medicine adjustment.

It seems to me that if someone can get to NYU to go see him, then they might as well travel to Boston instead to see the specialists who actually have started a mast cell disorder center.

Hey Zac, I can't recall how long ago you mentioned it was since you saw this guy once before but based one Cheryl's experience with him and your acknowlgement that your visit was very similar, I'm not getting a warm fuzzy about this idea. Going to see a doctor who doesn't have that baseline "I want to HELP my patients figure things out" but instead belittle's what you are going through in comparrision to someone else who may have it worse, well it just doesn't sit well. I'm afriad you will go to see him and naturally you will hold out for some help but that you will walk away with nothing AGAIN. I understand it's not always the easiest thing to work out going to see someone farther away, but when you look at the big picture and the fact that you are the one suffering, wouldn't it be better to hold out and start planning for a trip that, yes, may take you a bit further from home but one that you will be able to walk away with the comfort of knowing you are in the hands of someone who not only is experienced, well educated on the topic but WANTS to help you figure things out? MANY of us on this forum have gone through years of going from doctor to doctor with NO HELP! It really takes a toll emotionally not to mention the wasted time and during that time the usually symptoms worsen or increase.
I'm not trying to get in your business, I just hate to see you waste your time and come away dissappointed. What ever you decide to do, 1 - I hope it works in your favor and 2 - please keep us posted as to how you are doing and how your appointment goes. I wish you luck
Kim

I just saw Dr Soter last week at the NYU clinic.   I was attempting to find a doctor closer to home that has had at least some experience with Mast Cell Disease.   He was nice enough but dismissed me and suggested I follow an allergist instead?  I was so disappointed.  As you all know from experience that by the time you get diagnosed there are 100 doctor visits behind you and a medical history that is daunting to even the best of the best.  To be dismissed like this is certainly not what I expected.  I wouldn't waste my time again.