Does anyone else feel like they are a human barometer?  With every storm that blows in, I just get so achy all over (flu like ache) and the neurological symptoms flare up (dizzy feeling, fasticulations, muscle spasms).  This is on my usual antihistamines (zyrtec, zantac) and lyrica...errrg!  Maybe I need to try adding back the singulair?  I feel like that old lady whose hip could forecast the weather

Texan,

I fully agree with you; although I have not experienced bone pain on a regular basis I still get flare ups...  I live just north of Dallas and earlier this week we were "BLESSED" with 2 1/2 inches of rain over a 2 day period...  Where we needed the rain I sure did not need the effects of the storms; as they were the worst few days of the week for me.

We live in a suburb and with our HOA we have access to a nice private (resident only) pool.  Tuesday my kids wanted to go swimming and they know if I'm taking them that they have to wait until the temperatures cool off.  Well, Tuesday evening (around 7) it was overcast and the temperatures outside had dropped off; for me, I thought this is the perfect time.  So we hopped in the car and drove to the pool.  No sooner did I step in the water I had hives all over my legs and back and was flushing from head to toe.  Fortunately there was only one other family at the pool because I get embarrassed when this happens (I feel like people think I'm polluting the water when they look at me during a reaction).

Fortunately my wife was there so I got out of the pool (she saw what was going on); and I dried off, reached in her purse and grabbed my zyrtec and a bottle of water.  I sat in the shade for about 30 minutes feeling miserable; but trying not to completely spoil the kids evening; finally after 30 minutes I decided we had to come on home.

It stinks because the skin reactions are just part of it; then you have to deal with the stomach pain, diarrhea, nausea, and that night I ended up throwing up 3 or 4 times in a row...  But what do you do?  I'm sure everyone on the site tries to be as normal as possible; and my kids are so sweet.  Any other young ones would have been upset if after only 30 minutes they had to get out of the pool; but my 6 year old was quick to tell her younger sister that we had to get home so daddy could feel better...  

Ramona is so right about the Singulair; I just recently added that back into my regiment and it has helped; I guess though that there are always going to be situations we can't anticipate.

I hope you are feeling better today.

~Lucas

Here Here; to Summer being over -- I'm so jealous of Lisa as I understand Brazil is still experiencing their cooler time of the year...

Out of curiosity; where in TN do you reign?  I'm not an expert on the geography of the state; but in a previous life I had a lot of customers from Chattanooga all the way to Memphis and saw what I consider to be some of the most beautiful parts of this country (Oregon and Utah are up there on my list too); traveling in that area...  If I live to be 100 I will never forget my first trip to Ruby Falls.

Anyway I am happy to see your response and hope that means you are feeling better today.  On a side note, I don't know what I'm going to do when my girls get older.  My oldest is 10; but by technicality she is my step daughter (I hate the word step because I've been around since she was 16 months old); but that does mean that I have to share her; so she is currently with her Dad for the first part of her summer break.  I can't begin to think about how if the first 8 1/2 years (Time I have been around) went by so fast what I will do when she turns 18...

But I do want to wish a HAPPY BIRTHDAY to yours and congratulations

Wait a minute you guys, I've EARNED this break from the heat!!   Our temps here are on average about 95 degrees from the end of December until Mid March!  From mid November until Mid May our temperatures do not drop below 85 degrees unless a "cold front" comes through and then it may go into the upper 70s!  I have learned to live INDOORS by battening the hatches from 9AM until about 5PM when the winds blow and give us a breather from the high heat.  We get almost daily thunderstorms which will rip through and drop our temps by about 20 degrees, but that's not always the deal.  I live in an area with lower humidity than if I were at sea level, but we get humid days too.  We had a REALLY hot summer this year when we had almost a full month with no rain.  Our temps got as high as 110 in the shade!  It was awful and I was triggering all over the place!!  And I had to put up with you guys complaining about the snow and cold!  Ugh!  Oh, how I'd have loved right then to hop a plane and enjoy just a week of that snow!!  

Yet, I'm convinced that we Masto patients are really in need of making some real changes in our lives.   I think we need to hijack Ireland so that we can have a climate which doesn't drop way too low, but also doesn't get too high.  I wish Brazil had year round winter weather for it would definitely be IDEAL for us masto patients, but that's the trick, to get this kind of weather YEAR ROUND!!   Not an easy thing to find!

Hugs!

Lisa

sorry to hear of your trouble Lucus!  Sounds to me that you have cold urticaria on top of your regular masto problem for that going into the water and triggering with the water is a sign of cold urticaria.  Premedicate man!!  Take extra doses BEFORE you get into the water and see if this helps for if the water is too cool, that too will trigger you.  Crazy, huh?!

Hi Lucas!
Im sorry to hear you are feeling so bad.. I can relate.  I answered you on this on your other post too but one question.. how much Zantac are you taking?? Remember 300 mg, twice a day is what most of us need and are on. Do you have a prescription for promethezine?? (Phenergan). I take it whenever I feel nauseaous--which is about 3 times a day right now.I think the summers heat is exagerating our symptoms--even though I stay out of it.

Remember to eat slowly, just the act of it will activate mast cells. Theres still not something right with your meds--maybe try a 3rd mid day dose for awhile??
Heres hoping you feel better soon!
hugs
Ramona

I forgot to answer your question

I do not have a prescription for promethezine; but I will read up on it and share my findings with my Dr. -- I'm starting to become overwhelmed with all the meds -- I remember reading so much when I found the old forum about the number of meds so many people take and thinking HOW...  But over the last year I have started to understand the necessity of so many medicines that I now don't know what I would do without them.

~Lucas

PS Thank you for the kind offer... I cant travel anymore but I would have loved to before!
Hugs
Ramona

clicking my heels together 3 times and saying, I wish I could see Lisa in Brazil LOL... ah well maybe sometime when you come back...Im lucky just to have you as my friend!
love ya
Ramona