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"I've never prescribed that before" (Read 5869 times)
nelson1600
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"I've never prescribed that before"
06/20/11 at 05:20:16
 
First of all I want to thank Deborah for adding this category; it's nice to have a place just to get things off your chest Smiley

So Friday I had a Dr.'s appointment that I have been PATIENTLY waiting for over the last several weeks.  Even though my more severe reactions are controlled for the most part throughout the year (until the heat kicks in), my flushing, skin writing, hives, etc (skin reactions) have been constant.  I mean they let up every now and then for a day here or there; but for the most part I deal with them on a daily basis and throughout the day for that matter.

So in my exploration for answers (thank GOD for this forum); I have learned more about Gastrocrom and am 100% confident at this time that it is a necessity for me.

So as I opened up my notebook during my consult with my allergist on Friday and started going through the two page document I prepared to make sure that "NO" information was missed; I came to Gastrocrom.  His answer to me was "I've never prescribed that before and I don't want to just prescribe you medication for the sake of prescribing medication"

I laughed; I said look, it's a medicine used specifically in the treatment of mast cell patients.  Then I reminded him that getting a prescription was half the battle; "I STILL HAVE TO PAY FOR IT"...  I mean I got a little upset and my face started flushing; I told him that I am not in a position to ask for medicines that I have to turn around and spend money on unless I need them.

Anyway he's supposed to call me by Wednesday and I know he will give me the prescription; but come on...  I wouldn't wish this stuff on anyone; but I couldn't and still can't help but think that if he had to spend one crummy day in my shoes then I would already have the prescription and started taking this medicine that by all means is a necessity.

It's just an irritant and I'll get over it...  I appreciate this Dr.'s willingness to learn as we go especially since there are really no true "Mast Cell" specialists in my area.  It's just so frustrating some times.

Ok, I"m done with my vent...  And it actually feels good to get it off my chest...
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Riverwn
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Re: "I've never prescribed that before"
Reply #1 - 06/20/11 at 05:31:47
 
Hi Lucas!
Hon if you are still reacting that bad during the day and almost every day,then you are under still medicated. Try adding 1 thing in the am and see if that doesnt help. OR try adding a middle of the day dose while it is so hot. I can feel ya there. Today, here it is 100 degrees with a 110 degree heat index. Needless to say, I wont be going outside!!
Take care
Ramona
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Lisa
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Re: "I've never prescribed that before"
Reply #2 - 06/20/11 at 06:03:48
 
ATTA BOY LUCAS!!!!!  Smiley
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nelson1600
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Re: "I've never prescribed that before"
Reply #3 - 06/20/11 at 07:00:02
 
Ramona - Thank you for the response; I'm the king of an extra "zyrtec" these days and I agree I am still under medicated; I'm kind of stuck though...  My Dr. is a good man and very understanding; but being that I am his only mast cell patient and by no means is my degree of the disease worthy of getting him published I think he only researches what I bring to him as opposed to doing a little work on his own.  I feel like I am stuck in a major traffic jam Smiley -- I mean I know I will eventually get there, but instead of being able to do the speed limit I'm crawling at just a few miles per hour and have to stop for what feels like forever at times because of all of the unnecessary onlookers (if that makes any sense at all)

Lisa -- I have to give credit where credit is due; I have learned from so many people on this forum and especially you and Ramona that unfortunately we have to be stern with our Dr.'s when we KNOW better than they do how we feel...  Thank you for your constant support Wink
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Lisa
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Re: "I've never prescribed that before"
Reply #4 - 06/20/11 at 07:16:35
 
Did you ever get the feeling, Lucas, that you are an adult, but playing that game we all played as kids,  Green Light, Red Light?!   and Mother May I?

I feel, at times that I'm playing BOTH games at the same time, in that if my doctors turns their backs, then I'm able to RUN ahead and find information for myself and even some answers, but then they turn back around and everything seems to come to a halt cause I have to wait on them!   Then, when they are moving, they tell me to go through all kinds of weird steps, or I have to go through all kinds of weird steps, usually those of the circular type, or the baby steps forward and the giant steps backwards, in regards to what we do end up doing!   I feel like I'll NEVER, EVER get to the front stoop and be the one calling the shots!

Roll Eyes
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nelson1600
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Re: "I've never prescribed that before"
Reply #5 - 06/20/11 at 07:25:56
 
Nail on the head Lisa; that is EXACTLY what it feels like...  Maybe I should have said "Mother May I Have Gastrocrom" instead of "Here's some information on Gastrocrom, here is why I think I should be on it, and can you please prescribe it"

HA!  Thank you for the smile Lisa, I definitely needed it today...  Here's to getting to the stoop and calling the shots Smiley
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Doctor's are glorified auto mechanics of the human body; make sure you find one that you trust...
 
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Lisa
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Re: "I've never prescribed that before"
Reply #6 - 06/20/11 at 07:50:00
 
Hey Lucas, when you get to the stoop, do me a BIG favor.   I want you to yell out for me.....



ALL-Y ALL-Y  IN COME FREE!!!!!!!!!!!!!!!!!!!!

Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin Grin
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Donīt forget, there is so much more to life than being sick!
 
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nelson1600
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Re: "I've never prescribed that before"
Reply #7 - 06/20/11 at 09:02:41
 
Ha; I was kind of hoping that when you got there you might wave me in Smiley

Can we make a pact?  Whoever makes it first (I have a sneaky suspicion it will be you) will flag the other on in?


I hope you're having a good day and that all is well for you and yours in Brazil

~Lucas
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Doctor's are glorified auto mechanics of the human body; make sure you find one that you trust...
 
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Joan
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Re: "I've never prescribed that before"
Reply #8 - 06/20/11 at 09:26:05
 
Lucas,

  The sad situation is that he is worried about liability!  He had to research it to make sure he didn't think it would kill or maim you, and your next of kin then might sue him.

  There's nothing worse than a doctor who lacks curiosity about the "zebra" patients.  If I had a patient with a rare disease, I'd go read about it so I had enough knowledge to help help him/her!!!!  That's if I were a doctor...but, I'm not....
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Joan
 
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Lisa
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Re: "I've never prescribed that before"
Reply #9 - 06/20/11 at 17:49:35
 
I don't know, Lucas, if I'll get there first - I've got my doubts!  I'm afraid I'm one of those one of a kind pieces and I get the feeling they broke the mold with me!!  At least this is what it feels like the way I keep having to go climbing up the ladder of medical heirarchy!!!  I'm talking with scientists and researchers now and even they are saying Gee, never heard of THAT one!! Shocked

So, I get the feeling that you'll get to that stoop before I do!   But, without a doubt, when I get there I'll put out a holler that you'll hear stretching out over the Amazon and past the Gulf of Mexico and I'll call the entire pack of us in!!   I'll KICK THAT CAN and set all of us prisoners free if I at all possible, believe me!!!

Thanks for the well wishes, Lucas and I send them right back at you too!!

Kiss

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Donīt forget, there is so much more to life than being sick!
 
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