Hi Josie,  Glad your doctor is trying to help you get under control.  Ask him/her what the largest safe dosages are of what you're prescribed.  It's much higher than you might think.  Can't remember if you take Ketotifen or gastrocrom.

Stress can be a key factor, so do what you can to lower your stress level.  Resting can help stabilize things, too, so take a nap or rest during the day if there's an opportunity.  Some people find prayer or meditation relieves stress.  There are no right or wrong ways here.  If you have something that makes you feel more calm and relaxed, do it.  If writing and reading on the forum raises your anxiety level, stay off for a day or two.

Can't remember whether you were in the conversation about fragrances.  Eliminating those from all personal, bath, laundry, cleaning, and hair products can make a big difference in symptoms.  Later, when you are diagnosed and feeling stable you can test to see whether you can tolerate any natural scents.  The artificial ones, like they put into all sorts of products, give off VOC's (volatile organic compounds) that can cause flushing reactions, fainting, seizures and more, and not only in people with mast cell diseases.

You might want to check your house for indoor allergens that might act as triggers for you.  That would include looking for signs of mold, such as in the bathroom tub and shower or on the ceiling, in the kitchen or laundry area, around windows, etc.  If there have been roof leaks, that can cause mold problem.  If there is a dirt basement or crawlspace under the house, it should be covered with plastic sheeting.  It's spring, so if you react to any pollens, it might be best to stay indoors before 10:00 a.m. and after 6:00 p.m., when pollen counts are highest.

If you have pollen allergies, they can cross-react with foods, for example, some people react to melons during the ragweed season.  Also, some foods can be triggers without being true allergies.  If you keep a daily food diary along with your daily level of symptoms, you might be able to make a connection.  Some low histamine foods could be a trigger for you.  Highly acidic foods might be a problem.

If you have dust allergies, you will want to put allergy barrier encasings on your pillows, mattress, and box springs and wear a dust mask when dusting or vacuuming your house.

Remember, sometimes it's just not possible to know what causes a flare of symptoms, and all we can do is increase meds until they go away.

You're on a good track toward getting a true diagnosis.  Hope it comes soon.