You know by the way, I always wondered if there was an adrenal thing going on. At 19 I had a bunch of blood work because I have had increasing facial hair and awful sweating fits, adult acne(never had pimples as a teenager)I thought I was going through menopause. The blood work came back as elevated DHEA and elevated testosterone. They said DHEA is produced by the adrenals and they did an ultrasound to check for a tumor on the adrenal gland and also to check the ovaries for cysts. No tumor no cysts, had regular periods so they didn't think it was PCOS. Never got and answer they just prescribed spironolactone to lessen the male androgens and birthcontrol. About 5 years later had this all investigated again this time by an endo doc and they did all kinds of tests including one where they give me a shot of prolactin and I came back in an hour and have my blood checked, anyways the test was done wrong by the lab and the doctor said rather than make me do the test again she really believed it was PCOS and that insulin resistance comes with that. I have heard PCOS causes thinning of hair but I was told if I lose weight it will get better. I dropped 50lbs and it never did get better. Now I still have to lose weight again because I'm still packing the weight I gained from the last baby. Who knows maybe it will just take time for the hormones to adjust, I should be more patient. Sometimes, I just wish I could be normal and not have all these issues. The only good thing out of this is I have become very good at waxing, I wax a lot of my friends. Lol!
Melissa

Hi Melissa,

I definitely don't have masto, but I am pretty sure I have MCAD, though my doctor refuses to treat me for that (please see my post from a few minutes ago in the general MCD folder).   He also refuses to do a skin biopsy for spindle-shaped mast cells.  Yeah, a real winner!  Time to find a new doc.  This one absolutely won't think outside the box.  

I'll definitely look forward to hearing reports from the conference in April!  

Larken

Hi Larken, just wanted to quickly comment I was diagnosed fibro in the late 80's. I also have hypothyroid, and adrenal issues, and female issues. I finally tolearate a thyroid medication, i had given up for years, am on natural progesterone, and I have to say the greatest thing that helped my fibro was food elimination. Holy cow what a difference. If I "retest" dairy or say wheat, that night/day I am back to high pain. Nutrasweet was a another huge one for severe bone pain, now it'd trigger me to anaphalaxsis probably.
I take a mag/potassium supplement for my adrenals, gave up on exploring, my lifestyle was insane for my adrenals, grandparents sick, young children, homeschooling and running a business, of course my adrenals were taxed! For some reason I really dump potassium so I have to keep it in line with sodium intake. I did give up on adrenal supplementations  I just rejected too many of them. I've learned to say no and hope my adrenals are recovering!
Anyway just wanted to pipe in on the food/ and pain issues, it really was unbelievable the difference, it took quite a few months for it to lessen, but now that I am off if I have something bam it's that day the bone/skin pain is back. I'd probably still be positive for fibro, I'm sure my trigger points are still pretty positive, if someone comes up to say hello and grabs your arm excitedly and "applies pressure" that still will hurt for 20 minutes after. But I do not lay in bed all night throbbing, and for that I am so grateful!
On the off hand subject! A good pair of orthotics and shoes also changed my life with bone/hip pain. I really hate ugly shoes, but I started getting these cysts in my hands and feet, mortons neuroma, spurs and my hips were in constant agony. I was going to get straightened constantly. Well the cysts and metatarsaligia, and spurs and hip pain wouldn't stop I took the plunge and WOW, so finally finding a orthotic I didn't react to and a shoe and I try now to make newbalance look amazing   On your MCAD issue may I suggest while you are seeking the correct doc, try treating with antihistamines yourself to see if there is a difference. You may already be doing that, I've got to look on your other posts! That is what I am doing, luckily my current MD is on board with me, he's known me for a long time and my issues and said this fits, we've weight all other options, and the fact I respond well  to antihistimines is a clue we are onto something.
On your angioedema, I've told docs I am a human pufferfish, it is ridiculous  I can literally be wearing a pair of pants that are baggy and after not feeling well can put them on and not get them buttoned. It's insane

How do you guys know your adrenals are fatigued. Is there certain signs? Or did you get certain tests preformed?
Oh also, I came across an article the other day about a link between low progesterone and fibromyalgia, and how when the patients where given progesterone and their symptoms of fibro disappeared. You guys heard of that before? I know I have low progesterone, I have in the past.
Melissa