Hi Larken, just wanted to quickly comment I was diagnosed fibro in the late 80's. I also have hypothyroid, and adrenal issues, and female issues. I finally tolearate a thyroid medication, i had given up for years, am on natural progesterone, and I have to say the greatest thing that helped my fibro was food elimination. Holy cow what a difference. If I "retest" dairy or say wheat, that night/day I am back to high pain. Nutrasweet was a another huge one for severe bone pain, now it'd trigger me to anaphalaxsis probably.
I take a mag/potassium supplement for my adrenals, gave up on exploring, my lifestyle was insane for my adrenals, grandparents sick, young children, homeschooling and running a business, of course my adrenals were taxed! For some reason I really dump potassium so I have to keep it in line with sodium intake. I did give up on adrenal supplementations I just rejected too many of them. I've learned to say no and hope my adrenals are recovering!
Anyway just wanted to pipe in on the food/ and pain issues, it really was unbelievable the difference, it took quite a few months for it to lessen, but now that I am off if I have something bam it's that day the bone/skin pain is back. I'd probably still be positive for fibro, I'm sure my trigger points are still pretty positive, if someone comes up to say hello and grabs your arm excitedly and "applies pressure" that still will hurt for 20 minutes after. But I do not lay in bed all night throbbing, and for that I am so grateful!
On the off hand subject! A good pair of orthotics and shoes also changed my life with bone/hip pain. I really hate ugly shoes, but I started getting these cysts in my hands and feet, mortons neuroma, spurs and my hips were in constant agony. I was going to get straightened constantly. Well the cysts and metatarsaligia, and spurs and hip pain wouldn't stop I took the plunge and WOW, so finally finding a orthotic I didn't react to
and a shoe and I try now to make newbalance look amazing
On your MCAD issue may I suggest while you are seeking the correct doc, try treating with antihistamines yourself to see if there is a difference. You may already be doing that, I've got to look on your other posts! That is what I am doing, luckily my current MD is on board with me, he's known me for a long time and my issues and said this fits, we've weight all other options, and the fact I respond well to antihistimines is a clue we are onto something.
On your angioedema, I've told docs I am a human pufferfish, it is ridiculous I can literally be wearing a pair of pants that are baggy and after not feeling well can put them on and not get them buttoned. It's insane