Thank You Joan!

Has this been updated on the document yet or is it still the original version?

Sweet Tea, if you look at the REMA protocols that we have listed here, these are the correct protocols.  I received them from Dr. Escribano so they have not been transcribed.  He does have an updated and even superior version of these on the web.   I helped him with the translation of this version and in my opinion it's superior to anything else out there!!  It has gotten me safely through my open heart surgery and as long as the doctors follow these guidelines and also respect the work that Nancy Gould and Gigi Parks did on guidelines as to anesthesia and surgery, togehter these documents will get you through pretty much any kind of medical procedure.

Here's the link to the REMA Protocols - it's a PDF file and you can download it for yourself and send that file on to your doctors.  I would also recommend that you begin meeting with some anesthesiologists.  This is something that nobody speaks about and we mistakenly think that the person in a surgery who calls the shots is the surgeon where in truth it's the anesthesiologist!   He is who tells the doctor to begin or to stop and what is going on with the patient.  He's the one who is in constant "communication" with the patient even though the patient may be totally out due to the meds, the anesthesiologist is still who is constantly monitoring him and knows what is happening.

So, for your safety's sake, it's good to have a couple of anesthesiologists updated and aware of your illness so that should an emergency arise (God Forbid!) they are prepared for you.

This is why it's good to also have a copy of this article in the glove compartment of your car.

Lisa

I didn't bother to post it cause it's in the section for the emergency protocols.   But to make it easier, here is the link:  http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1293571751/3#3


Lisa