(Archived from annalynne - original forum)
Your post brings back lots of memories... running from soccer field to soccer field, to dance , to baseball, etc... I miss those days... I never felt well either, but better then than now. Nice your hubby is so supportive and helpful!

I'm not doing well at all. Almost fell down the stairs today, more than once, and am wondering what the next step will be for me to prevent such a thing.I'm pictureing a chair lift!!! ;o)

I do think the prednisone I've been taking is making things much worse, and I hope when i can stop, I'll feel a bit better.
My best momets are always when I have my little grandson with me, Teddy. he's 4. I have him often. He's easy, doesn't require a lot fo me when its just the 2 of us. He gets wild when my mother had him, he's very patient and quiet with me, we have fun doing simple things.

It's kind of hard for me emotionally, being out and about with my quad cane.. I have a different self concept now... frail.. wobbly... but I persist in trying to live life and not give in. learning to know the difference between acceptance and giving in... not giving up... just wanting to accept and be realistic, and not deny anymore what I can do, and that I wonlt likely be getting any better than this.

But i did get out to my mothers church fair today. I thought when i got the cane pople would realize i need a little more space, but really, they step on it. and fight to get around me in a hurry to be the first in line or to get to the yard sale items!!! Kids nearly knock me down, sometimes I gently speak to them to teach them to respect when someone has a cane they might need a little room... they usually listen, intertested to learn... and want to know why I have it.

So I had fun bringing Teddy, but needed help with what used to be simple things, like getting something to eat.. carrying food, and a cane and holding his hand... well Deb, as a mom, you know what it's like to need more than 2 hands!!

I just don't know when the spiral down will stop. I don't mean to be negative, I am trying to accept what I need to, and fight for what I should still fight for, but not use my energies fighting for things that aren't going to come to be anymore.

The rest of the weekend was spent just not feeling well, having had mor prednisone for a tooth extracton. I've been amazed at how I feel, and my vision being so awful.. but glad to have found the information that leads me to believe it's the prednisone, because if it is, then I have hope that it isn't a further exacerbation of illness, but rather, something that will subside when I'm off the prednisone!

Ups... and downs... all around... just like all the rest of life... for everyone.

I have trouble sleeping.. probably again the prednisone... so I'm here babbling... when I am foggy and/or tired, I babble on terribly... does this happen to you too? or is it a me thing?

Glad to see so many have already joined!!! its going to be a great forum!
Blessings!
Lynne

15 September 2008 12:40 AM