Hi Gumby, I'm sorry it's going so hard for you right now. It's definitely NOT EASY living with this disease!!!!
It sounds to me like you are in a masto flair, which happens to many of us when the disease is coming out of it's hiding place and making itself known. Until you are on the right meds and can get it to calm down, things can keep getting worse. Been there, done that and boy is it the PITTS!!!
And yes, your reacting sounds very similar and I've gone through some of this too.
It's important that testing be done for carcinoid syndrome and basic blood testing should be enough to rule in or out that cancer. But masto is not so easy to diagnose because the tests are not reliable for us - some of us show the elevated markers for masto and others of us do not. Each patient is different and it depends on the form the patient has and the stage he's in and then his own genetics. It's a tough disease to diagnose!!!
As to the hypertension, there exists a rare variant form of masto which elevates the BP. The article is called the Biochemical Diagnosis of Mast Cell Disorders and can be found at this link:
http://www.nature.com/jid/journal/v96/n3s/full/5612609a.html which indicates this form and should be enough to help your doctors. There are more and you need to google Hypertension & Mastocytosis and then you'll find a couple or so.
I have had my pressure go sky high with contrast - up to 220/110!! You MUST premedicate in order to do any kind of invasive testing or medical procedures which use contrast. If you go over to the section on PROTOCOLS you will find a copy of the REMA protocols and your doctor needs to see these and pre-medicate you prior to any kind of scans which use contrast.
As to narcotics - THESE ARE MAST CELL DEGRANULATORS!! They are definitely NO NOs for us as that most of us react to them big time. Opioids and their derivitives, etc. NO'S!!!!
As to feeling angry, yes, even this has been seen amongst us because the mediators create these problems in that they influence our brain and cause issues with it regarding our emotions. It's called Mixed Organic Brain Syndrome and it's proven connected to mastocytosis in all its forms.
http://www.ncbi.nlm.nih.gov/pubmed/3749421So, yes, all that you are describing can indeed be part of masto!!! Whether or not you have it depends upon your testing!
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I hope this helps!!!
Lisa