(Archived from starflower - original forum)
starflower
National Jewish Hospital in Denver has an excellent reputation for research and treatment of chronic urticaria... they might be able to help you too.  That's where my antibody tests are sent.

Heather
__________________
Through the years I have learned
Some things worth the tellin'
And you'd be right in guessin'
That each and every lesson... they were hard won.
22 August 2010 09:55 AM

(Archived from jysmith - original forum)
jysmith
Hi Schatzi,

  I'm also in Colorado.  There is a doctor, Richard Weber, at National Jewish who has a good reputation among mast cell disorder patients.  (It's an out-patient facility, and they have departments for allergy & immunology, respiratory problems, rheumatology, and others.)  I can't say I can recommend any other docs there, as I had a bad experience with a Fellow who didn't know enough about mast cell problems, and I don't know any of the other docs.  At CU Medical Center in Denver, there is a doctor named Stephen Dreskin, who I've seen and who treats mast cell disorder patients.  It takes a while to get a first appointment, but he seems good at managing medicines and symptoms.

  Sadly, the only hematologist who treated mast cell disorders at CU Med Ctr. died a few months ago.  Hoping he'll be replaced at some point with someone who knows something about mast cells.

  There's no one here who is like Dr. Akin or Castells or some of the other mast cell experts, but either of the doctors I mentioned can consult with Brigham & Womens to keep on top of a treatment plan for you.

 Hope that's helpful, Schatzi!  BTW, there's a mast cell disorders support group for northern Colorado.  If you look on the TMSforacure website, they have the contact information.

Joan

__________________
Take care, Joan

*******
"I try to take one day at a time, but sometimes several days attack me at once."
23 August 2010 10:59 PM

(Archived from jysmith - original forum)
jysmith
Hi schatzi,

  The southern Colorado support group is organized by a person who lives in Salida.  I can put you in touch if you'll be nearby.

  Good luck on your sale and move!

Joan
__________________
Take care, Joan

*******
"I try to take one day at a time, but sometimes several days attack me at once."
24 August 2010 11:22 AM

I would like to let everyone know about my Hemotologist Oncologist - Dr Michael Marris at the Rocky Mountain Cancer Center in Denver.  I don't know whether or not he had another masto patient before me, but he was diligent about explaining the disease to me.  He researched all the blood tests that I would need, and of course he did them all.  He setup my bone marrow biop.  He made sure I knew how important it was for me to get my mamograms every year.  When I first called them I was pretty worried about the implications of my diagnosis, and they gave me an appointment pretty quick.  And BTW, the staff there are exceptional as well.  

Anyone in Colorado with cutaneous masto who is looking for an alergist doctor should keep in mind that Dr Dreskin does NOT see CM patients.  He does see SM patients and some other mast cell disease patients.  I will be going to Dr Weber next.  It does sound like he sees CM patients.  I will post an update after I go.  The wait list is about two months.