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http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> General Mast Cell Disorder Discussion >> antihistamine intolerance - substituting VERY low dose prednisone http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1424376864 Message started by VickieS on 02/19/15 at 08:14:24

Title: antihistamine intolerance - substituting VERY low dose prednisone
Post by VickieS on 02/19/15 at 08:14:24

After diagnosis in 2010 (patient of Butterfield and Castells), used quercetin and low/no histamine diet with success until 2013. Debilitating fatigue, headaches, fecal and urinary incontinence [yada yada (endless list)] symptoms started increasing slowly on a regular basis in 2013 leading up to a 2014 of added asthma symptoms, wheeze, inability to catch breath, upper respiratory infections and 4 rounds of prednisone and antibiotics. Prednisone worked! Incontinences, brain fog, headaches, fatigue, etc improved. Three days after completing prednisone treatment symptoms would start again. I am working with local allergist/immunologist on a very low dose prednisone (2.5 - 7.5mg TOTAL/DAY, divided (am/pm), depending on symptoms) regimen. I am unable to take ANY antihistamines, mast cell stabilizers or other specific anti-inflammatory meds due to side effects. Refused Xolair (cardiac disease in family).
***Has anyone else used this strategy?***

Title: Re: antihistamine intolerance - substituting VERY low dose prednisone
Post by starfish on 07/27/15 at 16:44:50

Hi Vickie, I am taking 2.5 mg prednisone daily and it has helped. I still take other drugs too, but this has been what has helped the most out of anything. I worry about side effects that are unseen. I tried zolair but had a reaction. This is a late response but hope you are feeling better. :)