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General Mast Cell Disorders Discussion >> General Mast Cell Disorder Discussion >> Maine Woman with Severe Mast Cell Disease on National TV Show
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Message started by mountain girl on 02/18/15 at 01:21:58

Title: Maine Woman with Severe Mast Cell Disease on National TV Show
Post by mountain girl on 02/18/15 at 01:21:58

Woman with severe mast cell disease to be interviewed on The Doctors TODAY (2/18/15)! Airs at 9:00 a.m. EST on CBS. Check your local listings. National awareness for mast cell disease!!

http://www.thedoctorstv.com/episodes/woman-allergic-to-the-world-shocking-relationship-wrecker-revealed-the-real-deal-on-vaporized-alcohol

Title: Re: Maine Woman with Severe Mast Cell Disease on National TV Show
Post by Kallie2 on 02/18/15 at 05:55:07

I watched this, very interesting.   I noticed she had a huge bag full of medications.  I don't know where I got the idea people with MCAD are also allergic to medications which are also chemicals.  I hope she is able to tolerate the tiny house that was donated.  Hopefully they used environmentally friendly materials.

I'm glad attention has been brought to this disorder.

Title: Re: Maine Woman with Severe Mast Cell Disease on National TV Show
Post by sarahkay1111 on 02/19/15 at 14:25:47

I watched this too, and was also wondering if she is having problems with the fillers in all of her meds.  I hope she gets more help!

Title: Re: Maine Woman with Severe Mast Cell Disease on National TV Show
Post by mikev on 02/20/15 at 10:14:13

most people don't realize all the filler in our meds & when go generic fillers change usually to cornstarch, which can be an issue. i had trouble with original ketitofen script from canada. when i found clark's phamacy in washington that makes his own without filler, no issues & some relief, now over 2 yrs.

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