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General Mast Cell Disorders Discussion >> Medicines >> Medication that has helped! :)
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Message started by Aggie48 on 03/23/14 at 13:13:21

Title: Medication that has helped! :)
Post by Aggie48 on 03/23/14 at 13:13:21

For the first time in my life I have been suffering terrible with hives and facial swelling.  Always in the past when I was having a flare, it would affect my stomach, but the hives have been a whole new special hell.  Anyway, after 4 months I finally got in to see my mast cell doc and he told me to take Tagamet - that it is an older, "dirtier" medication containing an H1, H2 and H3 blocker and it should help with the hives.  Right now I am taking 1 zyrtec and 1 tagamet in the morning and the same at night.  I can say the hives are 80% percent better.  The Tagamet has really helped.  Just thought I'd share that with you guys.  I had a endoscopy and colonoscopy last week.  waiting on the results.

Title: Re: Medication that has helped! :)
Post by Ladybug on 03/23/14 at 16:27:05


Aggie48 wrote on 03/23/14 at 13:13:21:
For the first time in my life I have been suffering terrible with hives and facial swelling.  Always in the past when I was having a flare, it would affect my stomach, but the hives have been a whole new special hell.  Anyway, after 4 months I finally got in to see my mast cell doc and he told me to take Tagamet - that it is an older, "dirtier" medication containing an H1, H2 and H3 blocker and it should help with the hives.  Right now I am taking 1 zyrtec and 1 tagamet in the morning and the same at night.  I can say the hives are 80% percent better.  The Tagamet has really helped.  Just thought I'd share that with you guys.  I had a endoscopy and colonoscopy last week.  waiting on the results.


Hi Aggie,

I sure hope the Tagamet works for you. I, too, just had an endoscopy and colonoscopy done. Doc took about 18 biopsies for the special staining. I was told that I should hear something this week. Did your doctor say anything about doing the 24-hour urine test?

Title: Re: Medication that has helped! :)
Post by Aggie48 on 03/24/14 at 11:48:31

No urine test this time.  So far the Tagamet is definately helping!

Title: Re: Medication that has helped! :)
Post by brigitte on 03/25/14 at 07:00:13

So glad to hear the tagament is working!! Gotta love when that happens:) I hope you continue to see improvement!

Title: Re: Medication that has helped! :)
Post by Ladybug on 03/25/14 at 08:27:05


Aggie48 wrote on 03/24/14 at 11:48:31:
No urine test this time.  So far the Tagamet is definately helping!


Hi Aggie,

That's good news. I would like to learn more about Tagamet. Is there a website that you can recommend that explains it having H1,2,3? Thanks!

Title: Re: Medication that has helped! :)
Post by Aggie48 on 03/28/14 at 13:31:23

Hello Ladybug!
  Unfortunately I do not have a website with more information.  I will say,  the tagamet has really helped with the hives.  I still have them, but I'm not covered like I was!  Are you experiencing hives too?

Title: Re: Medication that has helped! :)
Post by Ladybug on 03/28/14 at 14:57:42


Aggie48 wrote on 03/28/14 at 13:31:23:
Hello Ladybug!
  Unfortunately I do not have a website with more information.  I will say,  the tagamet has really helped with the hives.  I still have them, but I'm not covered like I was!  Are you experiencing hives too?


Yes, I am having a horrible time, so bad that I had to call in sick from work Wednesday.  :(  Wheals all over my thighs and buttocks and spot hives on my face, right arm and hand.

I've been doing pretty well with ketotifen, H1/H2. But something must hvae triggered me. My doctor had me start 81 mg aspirin a few days before and also to go off my low histamine diet. I also started taking Benedryl. We don't know which of the 3 triggered this. I stopped all 3 changes. Once I stabilize, I will reintroduce aspirin to see what happens.

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