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General Mast Cell Disorders Discussion >> Symptoms >> New symptom
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Message started by wilsongarrett on 01/31/14 at 03:00:06

Title: New symptom
Post by wilsongarrett on 01/31/14 at 03:00:06

I am still on the journey into finding out what is wrong! I have not been able to find a doctor in the Atlanta area that treats mast cell, so please let me know who you know! Ok.. Everytime I eat peanuts my body goes into an upper body tic. Shoulders, neck, face twitches terrible. If I stand my torso goes forward almost touching my toes. It's so painful. Anyone else have tics as a symptom? I feel like I'm going down hill quick. Doctors are happy with my Lupus and POTS diagnosis, but eating and tics doesn't really fit lupus!

Title: Re: New symptom
Post by Aggie48 on 01/31/14 at 09:13:58

Bless your heart!  That sounds really scary!!!  Peanuts are definately off your diet, to be sure! :o  The next step might be to try a low histamine diet, which means cutting out all fermented foods.  There is a lot of information on the internet about which foods are low in histamine.  See how you feel when you elimnate all the histamine foods.  Right now I'm in a big flare and all I seem to be able to tolerate are carrots, gluton free bread, and turkey - pretty nutricous huh? LOL.  I ate some blueberries today and I'm itching like crazy.  I won't have to eat like this forever - it will take about 6 months to get my body to calm down and then hopefully I can resume a more normal diet.   Hope this helps - wishing you the best of luck! ;D

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