Mast Cell Disorders Forum

Mast Cell Disorders Forum
http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> Mast Cell Disorder Doctors >> Phil Lieberman MD- Memphis- Anaphylaxis http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1365255089 Message started by Albymom on 04/06/13 at 02:31:29

Title: Phil Lieberman MD- Memphis- Anaphylaxis
Post by Albymom on 04/06/13 at 02:31:29

I went to my first mast cell disorder consult appointment this week with Dr. Phil Lieberman in Memphis. He is a specialist in Anaphylaxis. He was very nice and took his time with me reviewing my medical records. I am going to have the following tests next week to rule out a neuroendocrine tumor: Substance P; Neurokinin A; Pancreastatin; Vasoactive Intestinal Polypeptide (VIP); Chromogranin A; 24 hour urines for N-methylhistamines and Protaglandin D2.

He started me on Ketotifen 1 mg twice daily and gave me a prescription for Gastrocrom 200 mg four times daily if the Ketotifen is not helpful. He did say that I may need to go to the Mast Cell Center in Boston if I do not improve on these medications. I took Ketotifen 0.5 mg (1/2 tablet) last night. I am more dizzy this morning but did not have oversedation last night.

I already take Allegra 180 mg, Zantac 150 mg and Singulair 10 mg in the morning. I take Zyrtec 10 mg and Zantac 150 mg in the evening.
I am keeping my fingers crossed that I get some benefits from the Ketotifen. I am flushing daily with headaches, reactions to foods/odors, etc. Dr. Lieberman said that I may end up with a diagnosis of Idiopathic Anaphylaxis since my bone marrow biopsy was normal. But that he would have done three bone marrow biopsies from three different sites to be complete.

Terry

Title: Re: Phil Lieberman MD- Memphis- Anaphylaxis
Post by Anaphylaxing on 04/07/13 at 07:00:32

Glad you have a plan. Hope it works

He is a very respected doctor. He wrote the defining article on ketotifen use in idiopathic anaphylaxis and is very well published. Famous in the allergy world :) :)

I am on ketotifen based on word spreading about his research.

Title: Re: Phil Lieberman MD- Memphis- Anaphylaxis
Post by kimtg68 on 05/03/13 at 14:09:03

Looks like your getting somewhere Albymom. I hope you don't have to go to Boston. I think you mentioned once that you get sick traveling.
Isn't Ketotifen the one you have to get from Canada? I can't remember right now.