Mast Cell Disorders Forum

Mast Cell Disorders Forum
http://mastcelldisorders.wallack.us/yabb/YaBB.pl Non Mast Cell Disorders, such as Ehlers-Danlos, POTS, MCS-CF, etc. >> Non Mast Cell Disorders, such as Ehlers-Danlos, POTS, MCS-CF, etc. >> Polycystic ovarian syndrome. Anyone???? http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1357776277 Message started by brigitte on 01/09/13 at 12:04:36

Title: Polycystic ovarian syndrome. Anyone????
Post by brigitte on 01/09/13 at 12:04:36

Hi everyone! I feel like such a mooch on here! Always a taker of information and rarely a giver! I am so sorry for that :-[. So it it looks like I now have polycystic ovarian syndrome. Anyone else have this?? Just wondering if there seems to be any connection to mast cell disease, or if it's a totally seperate deal. I go back to the doctor tomorrow. I'm a little nervous. I'm pretty sure he's going to bring up medications, and God knows how iffy those are for us!!!!!

Title: Re: Polycystic ovarian syndrome. Anyone????
Post by Riverwn on 01/12/13 at 16:05:39

I also have it and so do both my sisters who have abnormal mast cells. One sister and I have had surgery for removal of cysts on ovaries. My mother had it too and it changed into ovarian cancer for her---but she was lucky and caught it quick, no reappearance in over 20 years.

I also have "cystic" type conditions in the rest of my body including Intersticial Cystitis (kidneys) and cysts over both eyes, one on the back of my neck under my hair and the new one is a ganglion cyst on top of my right wrist. I have no idea why cystic type conditions seem connected to mast cell problems but I think they are.
Have a great weekend!
Ramona

Title: Re: Polycystic ovarian syndrome. Anyone????
Post by DeborahW, Founder on 01/14/13 at 01:50:58

This Topic was moved here from General Mast Cell Disorder Discussion by DeborahW, Founder.

Title: Re: Polycystic ovarian syndrome. Anyone????
Post by DavinaRN on 01/17/13 at 10:46:45

I have PCOS and have been diagnosised roughly 8 or 9 yrs although it started 27 yrs ago (by exam 6 months pregnant, negative blood test). Currently I'm on yasmine. My Gyn and I joke that I'll be on birth control at 60, even though had tubal at 22 due to HELLP syndrome & severe pre-eclampsia at 28wks. As to is it related, have no idea. Just now being tested for MCAS.