Mast Cell Disorders Forum

Mast Cell Disorders Forum
http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> Specific Mast Cell Conditions and Those that Mimic Them >> Joints that pop in and out A LOT http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1354086682 Message started by phyre on 11/27/12 at 19:11:22

Title: Joints that pop in and out A LOT
Post by phyre on 11/27/12 at 19:11:22

Hi All,

I know it is normal for joints to pop in and out when you move around, especially when you get old, but my joints have been strange my whole life. Everytime I get up there is a different pinch here or there, and I have had sciatica so many times it does not even phase me. Sometimes I wake up like a pretzel, :D and that is when I need to self adjust my joints back to somewhat acceptable positions. People comment about the way the popping sounds too. It is not a crisp snap. Maybe a "hollow" sound would describe it better?

I also get problems with my neck. Many times the joints get tight and they wont go back into place. When I am having a reaction, my neck gets really stiff, and I get a migraine.

I don't think EDS matches my symptoms. I am not that flexible, my skin is not velvety, and it does not stretch. It could just be another absorbtion issue for me, but my other mal-absorbtion issues just started in the last 5 years. I never had a bone density test, but I think my bones are really strong. They said so during my bone marrow biop.

Does this sound like it could be masto related?

Title: Re: Joints that pop in and out A LOT
Post by MarciaB on 11/28/12 at 03:21:34

Hi,

I don't know if it's masto or old age but I get this everyday. Mine's only in joints that I've damaged in the past so I'm thinking it's probably from old age. I'm 57, but feel like I'm 77. Lol.

Title: Re: Joints that pop in and out A LOT
Post by kimtg68 on 11/29/12 at 16:14:14

Phyre, I have the dense sounding popping as well. Also the neck issue along with many other joint issues that sometimes I'm able to wiggle or move a certain way and it moves back in place. I do not have stretchy skin or velvetty skin and cannot bend my fingers like one would with EDS. OK with all that said.....i was just diagnosed with hypermobile and classic EDS!!!! Contrary to what many doctors think, you do not have to have all those typical qualities to have EDS. Do a Google search for Brighton and Beighton Test. See how many of the listed items you have in common.
I'm by no means a doctor or person of authority on EDS but it sure sounds like you most certainly could have that going on. The sciatica issue could be multiple different things but it is also common with EDS'ers for the SI joint to slip in and out and that could cause sciatica. I can intentionally pop my SI joints and a few others.
I wouldn't rule out EDS yet my dear. Did you know that NIH and Sinai are currently doing a study on the possible link between mast cells and EDS? YUP! So do some research and see what you think.

Title: Re: Joints that pop in and out A LOT
Post by phyre on 11/30/12 at 08:03:39

I score a zero on the Brighton and Beighton Test, but I have a few joints in my feet and toes that will pop out of place if I over extend them. Then I can get it back in place if I point my toe to my knee. (Hurts like you know what.)

So what kind of doctor would diagnose EDS? I am going to my GP next week, my hemo/oncologist in three weeks. Do I need to go to a bone/joint specialist?

I read about the study. I am not too hopeful of being part of it. By the time I get a diagnosis, they will have already started the study. It would be good to check though and get the right treatment.

Title: Re: Joints that pop in and out A LOT
Post by kimtg68 on 12/01/12 at 05:25:01

Well as with a mast cell disorder, finding a truly knowledgable EDS doc is not easy. It is recommended that you see a genetics doctor or a doctor who deals with connective tissue disorders. I lucked out as there is a doctor (genetics doc) who works at a connective tissue disorder clinic just 1 1/2 hours from me in Birmingham. What I would recommend if you want to investigate EDS testing is to go on an EDS forum and look for suggestions close to where you live or (what I did) look online for a connective tissue clinic or doctor within your comfort zone of travel. I personally would not recommend a rheumatologist but that's based on my personal experience.