Mast Cell Disorders Forum

Mast Cell Disorders Forum
http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> Symptoms >> Hair Loss? Leg Pain? http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1343914770 Message started by Tristessa on 08/02/12 at 02:39:30

Title: Hair Loss? Leg Pain?
Post by Tristessa on 08/02/12 at 02:39:30

Do any of you have hair loss that seems abnormal? I have been having shedding hair for a couple of years now. At first I thought it was just hormones and postpartum related since I had a baby in Oct 2010. The hair loss hasn't improved at all but I am not bald. My hair is just a bit thinner than before.

Another symptom I get that may or may not be related to mast cell issues is excruciating leg pain down at the bone. This is not a muscular pain at all. It radiates from the bone and/or nerves. It does seem related to how much I am up on my feet. I do get blood pooling due to POTS but still wonder if this may have anything to do with mast cells as well. My 4 year old son also gets this leg pain but doesn't have POTS.

Title: Re: Hair Loss? Leg Pain?
Post by Lisa on 08/03/12 at 13:57:10

Hi Tristessa,

First of all let me welcome you to the site! I hope we can help you find some answers. I'm sorry to see you've named yourself Tristessa, which I do hope someday you will change to a happier moniker.

As to the bone pain and hair loss. Yes, some masto patients do experience hair loss, but why, I don't know.

As to the bone pain, this should be taken seriously since mastocytosis causes bone issues. And even with MCAS there is also bone involvement, so you should see a good orthopedist and have your son gone over by him as well since masto is now being known to run in families.

I hope this helps!

Lisa