Mast Cell Disorders Forum

Mast Cell Disorders Forum
http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> Mast Cell Disorder Doctors >> please help me find a doctor on longisland http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1343106512 Message started by Emilyviolet on 07/23/12 at 18:08:32

Title: please help me find a doctor on longisland
Post by Emilyviolet on 07/23/12 at 18:08:32

i need a doctor in longisland Ny can someone find one for me if not i am willing to go into the city thanks so much

Title: Re: please help me find a doctor on longisland
Post by Emilyviolet on 07/23/12 at 18:16:11

what kind of doc speclializes in this anyway?

Title: Re: please help me find a doctor on longisland
Post by Anaphylaxing on 07/23/12 at 18:52:30

Hi Emily so glad you posted here and I hope people chime in. I live in Canada, but I THINK you're close to Boston. Oh my gosh if you can go to Brigham and Women's hospital and be seen at the centre of excellence there it would be the best possible case scenario. They are world experts. I really hope you can.

Depending on who and where it can be allergists/immunologists or hematologists. For me I saw some of those with no luck and needed a supportive family doc who was willing to look into things.

If you can travel, I'd get a referral to Boston if you can, or call the office there and find out what to do. 8-)

Title: Re: please help me find a doctor on longisland
Post by Emilyviolet on 07/23/12 at 22:32:59

thanks, they take insurance outta state though?

Title: Re: please help me find a doctor on longisland
Post by Anaphylaxing on 07/23/12 at 23:30:25

That is something that I know nothing about unfortunately! I'm sure someone else on here will. I recall a post recently on the mastocytosis society page looking for a doctor in the NY area which might be another place to check, but I'm sure people will have more ideas here.

If there's any way you can go to Boston, I would.

Title: Re: please help me find a doctor on longisland
Post by kimtg68 on 07/24/12 at 05:01:00

Emily, to comment on insurance you will need to contact your insurance company and explain you may have a rare disorder that requires a particular specialists to run the necessary testing and would they cover such a thing. If yes then you choose which specialist (Boston is closer to you and highly recommended by many on here) then call that office to inquire about them accepting your insurance. If it all lines up MAKE AN APPOINTMENT because it may take a few months to be seen and I know you are ready for some answers. Let us know how it works out or if you need more help.

Title: Re: please help me find a doctor on longisland
Post by Emilyviolet on 07/24/12 at 17:17:10

ok thanks so should i go there after a diagnosis or do they diagnose there? idk how that works, what do they do there? would i have to stay there for awhile for testing or do they all do it within a couple days?

Title: Re: please help me find a doctor on longisland
Post by kimtg68 on 07/24/12 at 17:22:44

Are you needinng a diagnosis at this point or proper treatment for an already diagnosed mast cell issue?

Title: Re: please help me find a doctor on longisland
Post by Emilyviolet on 07/24/12 at 18:00:07

diagnosis

Title: Re: please help me find a doctor on longisland
Post by Anaphylaxing on 07/24/12 at 20:05:43

They should be able to work you up without a diagnosis if you have your doctor refer you or call and ensure you have whatever testing they require prior to going.