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http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> General Mast Cell Disorder Discussion >> I'm confused - tryptase tests http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1342129427 Message started by FarmerJane on 07/12/12 at 10:43:47

Title: I'm confused - tryptase tests
Post by FarmerJane on 07/12/12 at 10:43:47

I've had 3 tryptase tests. 4.8, 4.4, and 4.2 in that order.
The 4.2 was taken right as I was beginning an anaphylactic episode.
I thought that it was suppose to go up during an attack.
I hate this!! Doing a upper GI and colonoscopy next to see if
there are an abundance of mast cells in that region since that
is where my episodes take place. Skipping stage 1 and 2 anaphylactic and going straight to stage 3 is not fun at all.
That last 4.2 really makes me feel like its all in my head.

Title: Re: I'm confused - tryptase tests
Post by Lisa on 07/13/12 at 01:30:28

I had this happen too!!

It takes a FULL HOUR before any tryptase enters the blood stream and then you must draw the blood before the 3RD HOUR has passed or it´s too late! The window is VERY SHORT so you must catch it at about 1 1/2 hours later.

This is information I received from DR. CASTELLS! I wrote to her asking why my reading came back .1ng when my baseline was 4.2 and i was JUST AS FRUSTRATED as you are!!!

Sorry, this has been mentioned in other places here on the site. I guess we should make a thread as to hows and whys with each test! Just never got around to it! sorry!

Lisa

Title: Re: I'm confused - tryptase tests
Post by FarmerJane on 07/13/12 at 03:02:39

thank you Lisa - I'll educate my immunologist.