Mast Cell Disorders Forum

Mast Cell Disorders Forum
http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> Mast Cell Triggers >> Lemon http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1327555638 Message started by Anaphylaxing on 01/25/12 at 17:27:18

Title: Lemon
Post by Anaphylaxing on 01/25/12 at 17:27:18

New trigger. .. the smell of real lemon! My husband loves this so this will be a problem.

throat itched like crazy, and tongue got puffy/dry mouth. Had to clear the house, but thankfully it stopped
:D
Seems like almost every smell now unfortunately. :-/

Title: Re: Lemon
Post by iamnotalone on 01/26/12 at 04:46:43

Oh Ana;
Im sorry :( ! That's awful. Lemon Is such a nice,comforting scent !
I use it as my "substitute" vinegar. I hope & pray for you (& others) that this "scent-sitivity" improves in time. Right now Im lucky to not have this too bad, so I can only guess what a bummer it must be! :'( When My allergies are really bad, n my nose runs a lot-SHhh,don't tell anyone- I stuff a kleenex up my nostrils (not in public tho) !!! :D
Hope I made you laugh ;D Hang in there,
lori

Title: Re: Lemon
Post by Anaphylaxing on 01/26/12 at 10:09:22

lol thanks for sharing

Yes it often makes me cry because I feel so limited and frustrated by it but am hoping to sort it out in time!

Title: Re: Lemon
Post by Lisa on 01/26/12 at 11:39:52

Ana, in a conversation I had recently with Dr. Afrin, when I spoke with him about my recent attacks due to perfume he told me that Xolair may be a possible treatment for me.

I also just saw that there is a study going on in Switzerland on the use of Xolair with masto.

No, I'm not suggesting to you to go to Switzerland and I for one would LOVE to go to Spain and see Dr. Escribano, but....

Why don't you run this past Dr. Castells and see what she may have to say about it?!! It's a suggestion, but they are trying this on masto patients, which is why I mentioned the study. Some are responding to it. It may be worth considering. Perhaps it might help you become less sensitive to things.

Lisa

Title: Re: Lemon
Post by Anaphylaxing on 01/26/12 at 17:38:42

Thanks Lisa, I'm taking my babysteps in getting off steroids, then might try Allegra or tapering or increasing some of my existing meds and if no luck I will look into it

But YES I will ask advice along the way!

At 12.5 mg of HC now! Hope I'll be off in a couple of months 8-)