Mast Cell Disorders Forum

Mast Cell Disorders Forum
http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> Mast Cell Disorder Doctors >> Doctors in the Mid west http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1309923387 Message started by Jenlwel on 07/05/11 at 16:36:27

Title: Doctors in the Mid west
Post by Jenlwel on 07/05/11 at 16:36:27

I live in Tulsa. I have an allergists that is pretty up on MCD, but would like another opinion. What about MD Anderson in Houston? or Chicago? Both easy flights.
Thanks
Jen

Title: Re: Doctors in the Mid west
Post by redbird on 07/05/11 at 16:49:47

Hey Jen...I like in Oklahoma too..I live way down south about 125 miles south of Okla city..
we use to have a support group in Oklahoma a few years ago
redbird

Title: Re: Doctors in the Mid west
Post by DeborahW, Founder on 07/06/11 at 03:06:17

Hi. I am in Indianapolis and have not found any specialists in the Midwest. If it were me, I would just fly to Boston and get an opinion from the main specialists. I was lucky to travel to see Dr. Cem Akin when he was in Michigan, but he has now moved to Boston. If I needed more help, I wouldn't hesitate to travel across the country to get it. The right info and assistance can turn your whole life around. It did mine!

Title: Re: Doctors in the Mid west
Post by Joan on 07/06/11 at 07:32:26

Hi Jen,

Since you said you had a positive test for too many mast cells in your digestive system, I would consider starting with Dr. Philip Miner, a GI doctor in Oklahoma City and a mast cell disorder specialist. He's one of several pioneers in diagnosing and treating digestive mast cell proliferation. Dr. Miner's website is: http://www.ofdr.org/

I haven't seen him personally, but my GI doctor knows him and would recommend him, as they both are working on mast cell problems in the GI tract.

Here's a link to one of Dr. Miner's articles:

http://www.ncbi.nlm.nih.gov/pubmed/14680622

If he can't help you, then I'd definitely go to Boston to see Dr. Akin or Dr. Castells. Good Luck!

Title: Re: Doctors in the Mid west
Post by Sandi on 07/09/11 at 12:57:14

Jen, I'm with everyone! I personally really want to see Dr Miner, Joan was talking about, gut issues are huge with me and he spoke at the last conference and I absolutely loved him my then runner up is of course Dr Akin!! Or Dr Castells also. For me Miner and the Gut are good, travel is a nightmare for me so my hopes are pinned on Dr Miner. If you have no gut issues go to Boston. I'd choose boston over MD anderson. I could be wrong but I believe MD Anderson only treats aggressive masto.