Mast Cell Disorders Forum

Mast Cell Disorders Forum
http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> Specific Mast Cell Conditions and Those that Mimic Them >> Wegener's Granulomatosis http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1304951328 Message started by juliegee on 05/09/11 at 03:28:48

Title: Wegener's Granulomatosis
Post by juliegee on 05/09/11 at 03:28:48

This is a vasculitis similar to Churg Strauss except it affects smaller blood vessels. The initial course of the illness typically affects the upper respiratory system and lungs mimicking mast cell disorders.

I have severe Reynaud's and my fingers and toes sometimes turn black which COULD be caused by granulomas blocking the small blood vessels. Because of this & my MCAD symptoms, I am being worked up for this condition.

Here's more info on the Mayo Clinic site:

http://www.mayoclinic.com/health/wegeners-granulomatosis/DS00833

Julie

Title: Re: Wegener's Granulomatosis
Post by Anaphylaxing on 01/14/12 at 16:42:53

Oh gosh, Julie! Here's hoping you don't have Wegener's .

Thanks for the link.