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http://mastcelldisorders.wallack.us/yabb/YaBB.pl Welcome! >> News >> ERROR IN EMERGENCY PROTOCOL PACKET!!!!! http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1296947967 Message started by Joan on 02/05/11 at 11:19:26

Title: ERROR IN EMERGENCY PROTOCOL PACKET!!!!!
Post by Joan on 02/05/11 at 11:19:26

There's an error in the TMS Emergency Protocol Packet regarding safe vs. unsafe muscle relaxants!! It is critical to correct this in your packet, especially if you might need surgery.

On Page 19, the text that discusses the safe muscle relaxants is correct. On the chart that follows on page 22, the drugs are reversed!!! So, please make this change if you have a packet! Your life could depend on it!!!

Title: Re: ERROR IN EMERGENCY PROTOCOL PACKET!!!!!
Post by Sandi on 02/06/11 at 15:49:27

Thank You Joan!

Title: Re: ERROR IN EMERGENCY PROTOCOL PACKET!!!!!
Post by Riverwn on 02/17/11 at 02:50:05

Joan is the best :)

Title: Re: ERROR IN EMERGENCY PROTOCOL PACKET!!!!!
Post by Sweet Tea on 06/24/12 at 13:15:27

Has this been updated on the document yet or is it still the original version?

Title: Re: ERROR IN EMERGENCY PROTOCOL PACKET!!!!!
Post by Joan on 06/24/12 at 15:19:39

I know the one on the TMS website is updated, and I think the one here was posted after the correction. Sorry, I don't have time to look right now. The chart and text should say the same thing.

Title: Re: ERROR IN EMERGENCY PROTOCOL PACKET!!!!!
Post by Lisa on 07/23/12 at 00:46:23

Sweet Tea, if you look at the REMA protocols that we have listed here, these are the correct protocols. I received them from Dr. Escribano so they have not been transcribed. He does have an updated and even superior version of these on the web. I helped him with the translation of this version and in my opinion it's superior to anything else out there!! It has gotten me safely through my open heart surgery and as long as the doctors follow these guidelines and also respect the work that Nancy Gould and Gigi Parks did on guidelines as to anesthesia and surgery, togehter these documents will get you through pretty much any kind of medical procedure.

Here's the link to the REMA Protocols - it's a PDF file and you can download it for yourself and send that file on to your doctors. I would also recommend that you begin meeting with some anesthesiologists. This is something that nobody speaks about and we mistakenly think that the person in a surgery who calls the shots is the surgeon where in truth it's the anesthesiologist! He is who tells the doctor to begin or to stop and what is going on with the patient. He's the one who is in constant "communication" with the patient even though the patient may be totally out due to the meds, the anesthesiologist is still who is constantly monitoring him and knows what is happening.

So, for your safety's sake, it's good to have a couple of anesthesiologists updated and aware of your illness so that should an emergency arise (God Forbid!) they are prepared for you.

This is why it's good to also have a copy of this article in the glove compartment of your car.

Lisa

Title: Re: ERROR IN EMERGENCY PROTOCOL PACKET!!!!!
Post by DeborahW, Founder on 07/23/12 at 07:48:15

Lisa, where is the link? It is not in your post.

Title: Re: ERROR IN EMERGENCY PROTOCOL PACKET!!!!!
Post by Lisa on 07/24/12 at 07:31:41

I didn't bother to post it cause it's in the section for the emergency protocols. But to make it easier, here is the link: http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1293571751/3#3

Lisa