Mast Cell Disorders Forum

Mast Cell Disorders Forum
http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> Mast Cell Disorder Doctors >> Michigan? http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1296918278 Message started by nikweth on 02/05/11 at 03:04:38

Title: Michigan?
Post by nikweth on 02/05/11 at 03:04:38

Does anyone know of anyone in Michigan.

Title: Re: Michigan?
Post by Lisa on 02/05/11 at 19:49:35

Dr. Cem Akin used to be at the University of Michigan and he had an NIH study going there, however, the NIH study is no more since he moved to Boston.

There are doctors at the U of Michigan who may have worked with Dr. Akin, however, he was the key man and I can't tell you how well they know masto there now.

Sorry!

Lisa

Title: Re: Michigan?
Post by nikweth on 02/06/11 at 05:55:41

Thanks. I didn't think there was anyone here besides Dr. Akin and I knew he left for Boston.

Title: Re: Michigan?
Post by Sunny on 03/13/11 at 08:13:17

Sorry it has taken me so long to respond. I have been on vacation.
Dr. Baldwin is seeing Dr. Akin's patients. I saw him this fall and thought he was knowledgeable. Also, he keeps in contact with Dr. Akin.

Title: Re: Michigan?
Post by nikweth on 03/14/11 at 09:08:00

Thanks for the tip.

Title: Re: Michigan?
Post by jbean on 04/25/11 at 09:46:59

There are no mastocytosis specialists here in Michy anymore. I see docs at allergy and at hem/onc (same clinic Baldwin is in).

Title: Re: Michigan?
Post by cat on 07/12/11 at 01:02:59

I'm new to masto and this forum. Dr Baldwin visited me in the hosp and diagnosed me with masto. I wondered how he was familiar with it. Tomorrow I go for my bmb and I'm nervous.

Title: Re: Michigan?
Post by DeborahW, Founder on 07/12/11 at 02:15:33

If you take a look in the tips section of this forum, you will see my detailed account of my bmb at Univ of Michigan Hospital. It was a breeze!

Title: Re: Michigan?
Post by iamnotalone on 09/19/11 at 12:12:46

Okay fellow Michiganders;
My "2 day TMEPisodes" have turned into 5 days of feeling like I met the bussiness end of a baseball bat. Been on n off here all day trying to glean info that would magically help me feel better fast. :-[ Before I make an appt. to see my allergist: (am thinking meds need tweaking?)
What did you think of Dr. Baldwin at UofM ? How was the BMB ? My allergist is out've troy Beaumont... Just weighing my options. Im currently on Allegra 24, Zantac 150 am, along w/ Nasonex and Advair;
Zyrtec 24 pm; & xanax for anxiety as needed...
thanks for sharing
lori

Title: Re: Michigan?
Post by Sunny on 09/20/11 at 05:05:12

I saw Dr. Baldwin on two previous occasions. I am fortunate because right now I am "stable" and most of the time feel well. He didn't change any of my meds that Dr. Akin has prescribed. On one of my visits to Dr. Akin we added Singular which helped considerably. I take Ranitidine, Zyrtec (the generic), Singular, Acephix (that was the key to my reflux and other intestinal issues) lovastatin for chloestrol and nabumetone which is the generic for Relefen to treat arthritis. So I don't know how Dr. Baldwin is as far as diagnosing a problem. He does keep in contact with Dr. Akin.

Title: Re: Michigan?
Post by iamnotalone on 09/20/11 at 07:34:20

Thanks Sunny !!!
It IS a Sunny day here and I feel somewhat human again thank God!
The aching all over is Much less today so I am going to check out some of the natural stuff listed on Dr. Theorides site, and printout Deb.s tips on Questions to ask my allergist, etc. Its the darn aching/inflammation that really stopped me from being useful to myself or anyone else these past few days. Now that I can "process" some of the great advice on here, I hope to put it to good use.
Hope you all are getting some sunshine back into your day too :)
Lori