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http://mastcelldisorders.wallack.us/yabb/YaBB.pl General Mast Cell Disorders Discussion >> General Mast Cell Disorder Discussion >> SM osteoporsis http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1296599486 Message started by peter on 02/01/11 at 10:31:26

Title: SM osteoporsis
Post by peter on 02/01/11 at 10:31:26

just to let you all know
nalcrom cromoglycate dose not stop bone loss
I have been on this for 6 mounths and my bone
T score has gone from 2.5 to 3.8 witch is about
1% per mounth not good so osreoporosis must be
Treted seprate good luck
peter

Title: Re: SM osteoporsis
Post by Joan on 02/01/11 at 14:51:14

If you aren't already, it would be good to consult with an osteoporosis specialist. Often, bisphosphonates are the best for many people with osteoporosis, but some people have a calcitonin deficiency, for which they can take calcitonin salmon (a nasal spray). Studies have shown that weight-bearing exercise increases bone density. Walking and lifting weights are excellent for improving the hip, femur, and spine. I went from osteoporotic to normal in both spine and hips using calcitonin salmon, walking at least a mile/day, lifting weights 3-5 times a week for 30 minutes, and doing yoga. It took about 1 1/2 years to get to normal, and I think I started out at -2.5. Of course that might not work for everyone, but there is hope!

Title: Re: SM osteoporsis
Post by cynclaire on 02/01/11 at 15:24:25

I have been monitored for about 3 years now and have osteopenia. Each year my bone density has decreased. I am 52. They put me on Evista and I had a severe side effect that I didn't immediately relate to Evista, hemorrhaging. Just wanted to pass it along to females being asked to take this drug for bone loss.

Title: Re: SM osteoporsis
Post by peter on 02/02/11 at 09:27:58

yes joan i was given IV somthing i did not get the name
but i felt like i got ron over by a truck for 3 days
the docs were not consened about the T score but
the speed of the bone loss aneyone with osteopnia
and SM should start tretment early and not wait for me it has got the arithts
going