Mast Cell Disorders Forum

Mast Cell Disorders Forum
http://mastcelldisorders.wallack.us/yabb/YaBB.pl Go for the Goal! The Motivation Thread! >> Go for the Goal! The Motivation Thread! >> Good News! http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1295995582 Message started by Riverwn on 01/25/11 at 10:46:22

Title: Good News!
Post by Riverwn on 01/25/11 at 10:46:22

I have great news this week--I feel like God is finally smiling down on me LOL. First I got final approval for my today! He told me to expect m back amount by Feb 10th and what it would be, He also said my regular checks will start on March 1st and how much is it!. I am so nlessed.
Then I got a phone call from Nih today!! They said "We didnt forget you...we dont have your letter of referrel yet, your tryptase levels and the results of your skin biopsies", I told them, "I had 3 skin biopsies done yesterday, my tryptase level was 4w and Im holing my letter of refferel to you." All looks good for setting a date soon to go to NIH. I get the biopsu results a week from Wed, and Im excited.. I asked them to please also request results for eosinophiles and basophils with the mast cells and he did it!! I feel very lucky right now :)
Hugs to all,
Ramona

Title: Re: Good News!
Post by Riverwn on 01/25/11 at 10:48:13

sorry for the terrible spelling, Im still in alot of pain

Title: Re: Good News!
Post by Lisa on 01/25/11 at 14:29:30

Yahoo for Ramona!!!! FINALLY WE'RE SEEING SOME PROGRESS!! Oh, boy! I feel as tense about your situation as my own at times!!!

But I'm really, really happy to hear this good news!!! YIPEEEE!
[smiley=2vrolijk_08.gif]

Title: Re: Good News!
Post by Kim on 01/26/11 at 04:17:31

Ramona;

I am so excited for you! Isn't it a sigh of relief when you know things are finally moving foreward? Let's us know when you get the date to go to NIH.
Kim

Title: Re: Good News!
Post by Sandi on 01/26/11 at 17:26:24

Seriously good news Ramona! I hope you get into a doctor that can now get your symptoms under control. I think you could wait 30 more years before another ambulance trip!! I was hoping you'd have some news by now!!

Title: Re: Good News!
Post by Riverwn on 01/27/11 at 14:30:45

My thanks to everyone! Im certainly happy about it all. I apologize for not posting the last week.. Ive been in some very bad pain, not controllable but it seems to be getting better now.. anyway, I love all of you and thankyou for remembering me and your kind words.
Love,
me

Title: Re: Good News!
Post by nycpots on 01/27/11 at 17:09:16

Congratulations. You have earned and deserve this bright patch....may this really be a big turningpoint for you!