Mast Cell Disorders Forum

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http://mastcelldisorders.wallack.us/yabb/YaBB.pl Emergency Protocols and Information >> Emergency Protocols and Information >> Idiopathic Anaphylaxis Protocol from Dr. Akin http://mastcelldisorders.wallack.us/yabb/YaBB.pl?num=1294020346 Message started by Lisa on 01/02/11 at 14:05:44

Title: Idiopathic Anaphylaxis Protocol from Dr. Akin
Post by Lisa on 01/02/11 at 14:05:44

Archived from Original Forum - DeborahW author

Here is the basic letter that Dr. Akin wrote for me on his letterhead several years ago so that I would always have an emergency protocol to carry with me and, thus, avoid arguing with emergency doctors/nurses regarding what COULD be wrong with me. Note, that he is very careful to point out that this protocol should only be followed if it appears to manifest as mast cell activation. (In other words, he leaves the door wide open that a patient could be suffering from something other than a mast cell attack, like a heart attack or something. We can't always assume everything is mast cell....) Obviously, this is a protocol for MY personal situation. It gives you an idea, though, of what your doctor should think about in writing a protocol for you.

"......is currently followed in our clinic for a diagnosis of idiopathic anaphylaxis. Patients with this disorder have recurrent episodes of anaphylactic shock or lesser symptoms and signs including flushing, abdominal cramping, diarrhea, hypotension and tachycardia. We would recommend obtaining a serum tryptase level within 2-3 hours of symptoms to document that mast cell mediator release is responsible for her symptoms. Anaphylactic episodes are generally treated with intravenous H1 and H2 blockers, and IM epinephrine if there is hemodynamic instability or respiratory distress. In addition, IV fluids and other support and resuscitation measures should be undertaken if necessary in accordance with the ACLS guidelines. Please do not hesitate to contact my office if you have any further questions."

Title: Re: Idiopathic Anaphylaxis Protocol from Dr. Akin
Post by Lisa on 01/02/11 at 14:07:39

Archived from Original Forum - riverwn2 author

Thanks for posting this, Im gonna steal it LOL.. its much better worded than the one I tried to write :)

Title: Re: Idiopathic Anaphylaxis Protocol from Dr. Akin
Post by Josie on 01/26/11 at 09:09:05

Hiya Everyone ,

I am also going to steal this to give my local doc some guidance :-) . i see Dr Grattans mate on the 1st of march . I am not autoimmune so now a toss up between HAE type 3 and MCAS xxxxxxxxxxxxxx

Liking the new forum ,

Jose :D