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General Mast Cell Disorders Discussion >> Medicines >> Ultram/tramadol
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Message started by Starflower on 05/18/11 at 12:55:21

Title: Ultram/tramadol
Post by Starflower on 05/18/11 at 12:55:21

Last week I had my annual check-up with my GYN.  I asked her if I could try Ultram for my recurring abdominal pain instead of Lortab.  I can't take aspirin or NSAIDs because they're blood thinners... and this pain is way to much for Tylenol.  No problem.  She said that Ultram is not as strong, but if it works for me it would be preferable to taking Lortab (a blend of hydrocodone and acetaminophen).  This evening I got my first chance to try it and I think it's a keeper.  It works about the same for the pain... reducing it to a manageable level..., but it doesn't make me as loopy as Lortab.  Definitely a good thing!

So here's my question... what dose works best for you?  My GYN gave me a Rx for 50mg tablets.  On drugs.com it says that the typical dose for rapid relief is 50-100mg.  The maximum per day is 400mg as long as it's not mixed with acetaminophen (mine isn't).  I took one 50mg tablet around 3:30 and another one around 6:00.

Heather

Title: Re: Ultram/tramadol
Post by mikev on 05/19/11 at 00:30:59

Heather:
As you may remember, I'm a big proponent of tramadol for my skin pain. My dose is 50mg & my doc says I can take up to 2 of them at a time max 4 times per day. So what you read looks right. I rarely use that must as the mornings are pretty quiet. My wife is using the one mixed with actaminophen for some back pain she has. She used to use darvicet & liked it a lot better. To be honest I have on occasion mixed it with tylonel  & didn't seem to do any more good for me than tramadol by itself. I as well never feel loopy with it. & it does what you say it does , just manage the pain not releave it. & never any increase in pain after it wears off like oxy or some of the other. So for me it's a keeper.
MikeV

Title: Re: Ultram/tramadol
Post by fuchsia1 on 05/19/11 at 12:59:50

I have taken ultram since I can't take aspirin or nsaids too.  Found it gave a lot of relief when I pulled a muscle, but after taking more than one dose I started getting itchy.  Took a benedryl before the next dose which seemed to help and then stopped it because the pain was gone.  One thing the pharmacist warned about was seizures.  I know a friend that got them after the tramadol (  same as ultram?), but I think she got a really heavy dose in the hospital.  I got hives from darvacet, so that's out for me.  The allergist suggested celebrex, but I haven't tried it yet.  Glad to hear ultram is working for you.  Marie

Title: Re: Ultram/tramadol
Post by texan1960 on 05/26/11 at 07:45:15

I would ditto what the folks above said.  I can take 2 at a time up to 4 times per day.  These seem to work better for  "nerve" type pain and the overall body pain we seem to get.  I can't take NSAIDs for more than a day or so, no shocking, but will flare IC, which can be quite unpleasant to say the least.  I also take Lyrica in concert with them and I think they kind of work together.  

Title: Re: Ultram/tramadol
Post by Riverwn on 05/26/11 at 09:27:52

I take Lortab (Vicodan, Hydrocodone) for pain, 10 mg.  I also have Tramadol 50 mg and I take that too. I alternate them so my system doesnt get used to either med and they both will work better for me when I need them :)
hugs
Ramona

Title: Re: Ultram/tramadol
Post by Starflower on 05/26/11 at 11:32:13

My GYN also increased my Rx of Lortab from 5mg to 7.5mg.  I'm a bit nervous to try it... a few times I had to take two tablets of 5mg (when one wasn't enough) and it made me VERY loopy.

I may have been a little too optimistic about Ultram.  I noticed that it takes a while (two or three hours) for the drug to reach it's peak... and when it does it still makes me loopy.  Not as loopy as Lortab, but loopier than I'd like.  Why do the good painkillers do that?!

Hopefully when I see Dr. Castells next month she'll have something new to try and I won't need so many painkillers.  [smiley=thumbsup.gif]  I've been doing my homework.

Heather

Title: Re: Ultram/tramadol
Post by Riverwn on 05/26/11 at 12:59:54

Its because your body isnt used to it. Most people arent as careful as we are when taking pain meds. We have an important reason to be careful. Ive gotten more used to my vicodan--and now when I take only 1 tramadol inbetween, I can really feel it. If I had done the opposite, it wouldnt have helped me as much (I think).
hugs
me

Title: Re: Ultram/tramadol
Post by Starflower on 05/26/11 at 13:12:52

Oh yeah... no serious person could accuse me of being an addict :P  I got my first prescription for Lortab in October (30 pills) and I haven't even used the whole bottle yet.

Heather

Title: Re: Ultram/tramadol
Post by Joan on 05/26/11 at 18:24:37

Marie,

Definitely look up the possible side effects of Celebrex before you start it.  It's a similar drug to Vioxx.  I'm not saying not to take it, but it does have serious potential risks.

Title: Re: Ultram/tramadol
Post by sherry on 05/27/11 at 04:37:07

Hi Ramona,
  Thanks for the advice. I dont have any biopsies coming back, the ones I had for my son all came back normal. We are waiting for a month now for the results from more blood tests. A blood test alos for the mastocytosis in that group. My son is age 11, 68 pounds. My concern with all the zantac and allegra, is the long term effects from these products. I try and do natural supplements and stay away from any more medications if possible. I have read over and over the long term effect of these medications and how harmful they can be on the stomach and actually cause long term effects of creating acid problems in the stomach,holes, etc. I know when you are in pain ,a person just wants relief but some of the blogs I have read some people are on pretty high doses. Does this concern you?
 I would love to come to your Dr. if I can not find help here in Tampa. Yes, Mayo is here but I dont know of anyone that specializes in the mass cell conditions. I will try to search there as well . Do you think these symptoms in my son sound like what ya'll are going through?
 Glad to see a Florida friend I can talk with....


Thank you,
Sherry

Title: Re: Ultram/tramadol
Post by Starflower on 05/27/11 at 05:20:43

Hi Sherry,

Zantac and allegra are both very safe... all H1/H2s are very safe for long-term use, even at high doses.  If your son really does have a mast cell disorder then it's much more damaging/disabiling for him to be unmedicated and live in a constant state of degranulation.  Some common medications are definitely best to avoid if you can help it... antibiotics, prednisone, statins, etc... BUT antihistamines are not like that.  Another very safe drug that your son could try is Gastrocrom (oral cromolyn sodium).  It stabilizes the mast cells, which prevents the release or formation of all kinds of mediators such as leukotrienes, heparin, cytokines, prostaglandins, etc...  Prostaglandins, for example, are what cause a lot of the pain.  You can block the effects with drugs like aspirin and Tylenol, but of course those drugs have risks.  Aspirin can give you ulcers... also, for many mast cell patients it causes more problems than it solves.  Even Tylenol can be damaging to the liver if taken in high doses or for long periods of time.  Gastrocrom is a much better solution!  Mast cell stabilizers are the only drugs that actually prevent symptoms.

Not all drugs are dangerous... and sometimes even if they are, you can't avoid them.  If your son had another serious disorder like cancer or schizophrenia would you treat him only with supplements?  A mast cell disorder is serious too.  We're just really lucky that our main treatments are not dangerous.

Heather

Title: Re: Ultram/tramadol
Post by mikev on 05/27/11 at 06:20:22

Heather:
I agree w/ Ramona. As you know I take Tramadol not every day but almost every day for my nerve pain. Now I'm going back a way but at first it may have looped me some, but now doesn't at all & it seems to react faster. I get down from the edge relieve in less than an hour.  So give it chance. I haven't taken the one your on so have no idea, but sounds like it has more opiate which for me means trouble. A question on singulair, as am trying to get on instead of my zyflo as it has less fillers. It seems to make me tired, as my prescription says take at night, so am now trying what Ramona does is take it in the morning to see if that works better. The problem with mastos is you never know if its the med or something else going on like a flu bug, but I'm determined to make it work.
Thanks as aways
Mike V

Title: Re: Ultram/tramadol
Post by Riverwn on 05/27/11 at 08:19:32

<--waving HI to Mike  :D

Hey Sherry,
I echo what Heather said about the antihistamines. She is BRILLIANT, you can always trust her advice.

Yes, at the beginning it seems that we take doses that are way too high, but its necessary for us to not react--reacting is much worse for us. It can cause some of us to go into shock, reacting also seems to affect some of our organs in a negative way too and there is a question pending for doctors about reacting actually causing damage internally--we dont have that answer yet.

So in the end its much safer (IF your son has masto) to take just enough meds to not only stop reacting, but to prevent it from happening. Your sons age and weight would mean that he would take aprox half the doses we take--and of course that would change as he gets older.
Hope this helps
Ramona

Title: Re: Ultram/tramadol
Post by Starflower on 05/27/11 at 09:23:12

Hi Mike,

Yes, the Lortab is an opiate.  Tylenol is not strong enough for this pain and I can't take aspirin or NSAIDs because of how they thin my blood.  So... I'm down to opiates.  Ultram is also an opiate, but it seems to be one that more mast cell patients (like you) are able to tolerate.  That's why I wanted to try it!  I've also had a couple of good experiences with Fentanyl.  All the opiates make me a bit nauseated, but I can easily get rid of that with liquid Benadryl.  What concerns me most is the extreme loopiness and fatigue.  These attacks always seem to happen at a bad time!  Like... in the late afternoon when it's time to pick up my kids from school.  

Anyway... I don't know if it will make a difference to change the time of day you're using Singulair.  It's not a fast-acting drug.  In my case, it took about a month to reach full effectiveness, both when I started taking it and when I increased the dose to 30mg/day.  It doesn't work as quickly as antihistamines.  For what it's worth... and I'm not sure this is cause and effect... I feel my best in the morning.

Good luck with your experiment!  I hope it does work :)

Heather

Title: Re: Ultram/tramadol
Post by Joan on 05/27/11 at 09:54:19

Hi Heather,

I went to the doctor yesterday and asked for an Rx for Ultram.  She warned me not to take it with Benadryl.  I don't know if that has anything at all to do with what you're experiencing, but she didn't like the combo of 1st generation antihistamines and opiates.  She also said not to take it with Zofran for nausea.  Don't know if other meds are contraindicated.  Sigh.  Meds can be so complicated.  

I still only have Tylenol for pain, which I'm lucky enough not to get very often, but it doesn't completely solve the problem.  


Title: Re: Ultram/tramadol
Post by Susan on 05/27/11 at 10:01:50

Heather, I have been on opiates for years now, and I think you will find the loopiness wears off. Your body begins to adjust to what is happening. You may also have less nausea over time, as nausea is a common side effect with opiates, but one most people adjust to.

I did have a very hard time with methadone, which can be used for pain as well as for getting off drugs. Methadone made my belly ache constantly, for months. I hated it, but was trying it due to insurance issues. Finally my doc switched me to morphine sulfate, which I have no troubles with. So if you keep having nausea, you could consider a different drug. Usually your body would adapt.

One thing for you to consider, is something all of my doctors who have experience with pain meds tell me. You want to stay ahead of the pain. You never want to be chasing the pain, letting it get bad and trying to make it better.

You can almost always use less pain medication if you plan well. If you are doing something that you know will cause an increase in pain, or you have a certain time it gets worse, take the meds BEFORE the pain gets going.

It is something about how the nerves that transmit pain work. Keep them calm, and you are OK, but once things ramp up, it is much harder to get relief.

Now, I don't know if it is true in masto, but this is the general way pain meds, including opiates, are used. Once I finally gave in to that, I did SO much better.

Another possibility, I believe there are some medications that are specific for GI pain. I can't remember the names, but I used to take them when I first got sick, as GI pain was very bad then. If your pain is primarily GI, and the other drugs aren't working well, for whatever reason, ask about the drugs often used in Irritable Bowel Syndrome, which is one of my original diagnosis.

Title: Re: Ultram/tramadol
Post by Starflower on 05/27/11 at 10:13:19

Joan...
My GYN warned me not to take Ultram and Lortab together (of course), but she didn't say anything about antihistamines.  Benadryl doesn't make me loopy... it never has... so I guess I'm not too worried.  Drugs.com and Medscape say there's a "moderate risk" if you take opiates with any kind of H1 antihistamine, including Zyrtec and Claritin.  Benadryl really knocks some people out, so I can see why your doctor would be concerned.

Susan...
I have been better about taking pain medication at the first sign, not waiting to see how bad it gets!  I figured it was like mast cell meds ;)  You're better off not waiting.  Thankfully, I don't have this pain every day... it comes every 3-4 weeks.  Maybe when the first day of the new cycle hits I could take one tablet each afternoon for several days until I know I'm in the clear again?  I'll ask Dr. Castells about it.  Mostly, I'm hoping to prevent the pain and swelling entirely.  If it really is angioedema then that presents some new options for treatment.

Heather

Title: Re: Ultram/tramadol
Post by sherry on 05/27/11 at 10:33:08

Heather and Romona,
   Thank you for the reply. I was wondering if the gastrocom was over the counter or do I have to have a prescription? I also purchased enteric baby asprin but dont know how much to give? Ramona, did you have your Dr.s phone number also? I would posssibly like to call and see when and if my Insurance would be taken.


Thanks so much Ladies!

Sherry

Title: Re: Ultram/tramadol
Post by DeborahW, Founder on 05/27/11 at 11:53:49

HI Mike!

It was great seeing you here in Indy! So, how did you feel the rest of the trip, and did you end up buying a car? :)

Title: Re: Ultram/tramadol
Post by Susan on 05/27/11 at 15:30:59

Yep, Heather. Finding the bottom cause is always the best, if possible. However you do it, I hope you find a way that keeps your pain managed. It is surprising how much energy pain saps.

Title: Re: Ultram/tramadol
Post by sherry on 05/28/11 at 13:07:07

HI lADIES,
   I JUST HAD ANOTHER QUESTION FOR YOU. MY SONS MAIN PROBLEM IS THE CONSTANT LOWER INTESTINAL/STOMACH PAIN, FLU LIKE SYMPTOMS. HE RUNS A FEVER FROM 99 TO 100 FOR THE LAST 5 MONTHS. I TOLD THE IMMUNOLOGIST THIS AND ABOUT HIS HOT COLD SYMPTOMS. SHE WAS CONCERNED ABOUT THE WEIGHT LOSS MORE AND HIS VERY LIGHT SKIN COLORING. SHE IS RUNNING MORE BLOOD TESTS AS I SAID EARLIER, BUT I WONT GET THEM BACK FOR A MONTH.
   MY QUESTION IS THIS. DO PEOPLE HAVE THIS CONDITON WITHOUT FLUSHING(I HAVE NOT SEEN THIS ON MY SON) ALTHOUGH HE SEEMS TO BE DEVELOPING MORE FOOD ALLERGIES HE HAS NEVER HAD A FULL BLOWN ATTACK YET. I HAVE GIVEN HIM BENNADRIL WHEN HE FEELS LIKE HIS THROAT IS CLOSING UP OR HE SAYS HIS TOUNGE IS SWELLING, I IMMEDIATLY  GIVE IT TO HIM. SINCE I HAVE ELIMINATED SO MANY FOODS THIS HAS NOT HAPPENED RECENTLY.
  MY MAIN THING IS HIM LIVING WITH THE CONSTANT LOWER INTESTINAL PAIN, STOMACH PAIN, ACHES IN BODY,SOMETIMES HEADACHES, QUIZZY FEELING EVERY DAY NOW FOR 5 MONTHS.it'S VERY HARD ON MY FAMILY LISTENING TO HIM SUFFER EVERYDAY. I ASKED THE IMMUNOLOGIST DR. THIS WEEK FOR SOME PAIN MEDICINE FOR HIM AND SHE SAID NO SINCE SHE DOES NOT KNOW WHAT IT IS. THE IMMUNOLOGIST I SAW A WEEK EARLIER THINKS MY SON HAS MASS CELL, THE NEW IMMINOLOGIST DOES NOT THINK SO.  SINCE THE BLOOD TESTS WONT BE BACK FOR A MONTH NOW, I CANT COMPREHEND WATCHING HIM SUFFER ANOTHER MONTH. THE PAIN IS ALWAYS WORSE AT NIGHT AND IN THE MORNING, ESPECIALLY IF HE DOES NOT EAT. HE TAKES VERY HOT BATHS EVERYDAY BECAUSE HE IS FREEZING, HE INSISTS ON THAT.
  DOES THIS SOUND LIKE WHAT YOU HAVE OR DO YOU THINK IT IS ANOTHER CONDITION? I HAVE TO TAKE CITRAZINE DAILY(MOM) AS I HAVE TOO MANY HISTIMINES IN ME.  YOU PROBABLY KNOW THE NAME BUT IF I JUST SCRATCH MYSELF THE MARK COMES OUT IMMEDIATLY. I ALSO REMEMBER HAVING CRISS CROSS RED STRIPES ON MY BACK LIKE TICK TAC TOE 2 YEARS AGO AND THE ALLERGIST PUT ME ON CITRAZINE WHICH SEEMS TO HELP. I WONDER IF I HAVE A FORM OF THIS.THE ONLY TIME MY SONS PAIN EVER STOPPED WAS  WHEN HE WAS ADMITTED TO ST JOSEPHS CHILDRENS HOSPITAL FOR THE COLLINOSCOPY , THEY KEPT HIM FOR OTHER TESTS OVERNIGHT AND THEY HAD MY SON ON A DRIP,.I THINK IT WAS A BLOCKER OF SOME TYPE AND MY SON SAID IT HELPED WITH THE PAIN.

THANKS AGAIN.

SHERRY

Title: Re: Ultram/tramadol
Post by Starflower on 05/28/11 at 13:38:42

Hi Sherry,

I really think you start a different thread about your son, but... if he felt  better on the "drip," then I would get his records from that hospital stay to figure out exactly what drug(s) they were giving him.  Was he being helped by antihistamines or pain medication?  Don't guess... get the records so you and your son's doctors know for sure.  It's your right as his guardian to get photocopies of all his records.

Heather

Title: Re: Ultram/tramadol
Post by sherry on 05/28/11 at 16:31:59

Heather,
  It was something for dehydration I believe, nothing for pain. The nurse acted like they give it to almost everyone. We did send for the records from the hospital because I told the Dr. that and she also wanted to know. I remember I called my sond gastrologist after he got home and told her this, she ordered a script for my son but it did not help with the pain and quit using them. So.......does his symptoms not sound to you like mas cell then? I can feel the inflamation and see his stomach extending even 20 minutes ago as he prepares for bed in pain again, lots of stomach gas again. Because of where this pain and swellling is(just below the belly button) he always has alot of pain when trying to push through a stool, whether soft or medium. stool test showed normal.He was on previcet for about 2 years which I heard is not so good long term.
   Tonight a new thing happened for the second time. My husband took my son to the pool at the clubhouse when he came home he was saying 'I'm itching all over!" we tried three showers to get him to calm down. I also noticed he is now having problems with out regular bar soap too so I through it out and used shampoo on him, that seemed to work fine. Do you think this is related to the pain in his lower intestines, stomach? Something is causing the inflamation.

sherry

Title: Re: Ultram/tramadol
Post by sherry on 05/28/11 at 16:45:15

Heather,
  I WAS THINKING,..............ONE OF THE REASONS MY SON MIGHT OF FELT BETTER IN THE HOSPITAL ALSO IS HE HAD TO FAST,.........NO FOOD IN HIS STOMACH FOR 1 1/2 DAYS. MAYBE NOTHING TO DO WITH THE DRIP.

SHERRY

Title: Re: Ultram/tramadol
Post by Joan on 05/29/11 at 16:42:04

Hi Sherry,

  I don't know if his abdominal pain is from the same problem as the itching, but the itching sounds allergic or mast cell-related.  Have you started your son on H1 and H2 antihistamines and probiotics yet?  Be sure probiotics are vegan, so they won't contain milk.  

  I would never rule out trying a recommended medicine based on possible long-term side effects.  You need a quick, short-term solution until you can get an accurate diagnosis.  You might want to ask his doctor about either gastrocrom or ketotifen.  They are very benign, as medicines go, and could help both allergic and mast cell problems.

  Also, if he's having throat closing, do you have a child's epipen twin-pack at home?  Ask his allergist about this, how and when to use it, just in case.  If an antihistamine like Benadryl works when his throat is closing, a regimen of daily long-acting antihistamines should help with some of his symptoms and maybe he can avoid those scary episodes as well as itching and other uncomfortable symptoms.

  You might want to check with your pediatrician about two things. First is whether you can give your son simethicone (Gax-X).  This may help the distention and pain.  Mylicon brand is approved for infants, and I would probably try that or one that has no artificial colors if you can find one.  There are generics, too, but some are colored.  If it were my son, I'd give him the maximum allowed dose for his age and size.
 
  I also would ask the doctor about prescribing an "elemental diet," which is a pre-digested nutritional drink (you can Google it), which allows the bowels to rest while still giving him nutrients he needs.  If he did better having electrolytes in the hospital, you could try giving him Pedialyte and see if it helps.

  I've found that a hot water bottle is very soothing for cramping, and if he's cold, it will help that, too.  In the morning, a cup of warm water to drink before he eats anything might be soothing, too.  If he can tolerate it, you could add a spoonful of honey.  

  An allergy elimination diet might give you some more information.  His allergist can explain how it's done.  Just be sure to also eliminate all high histamine foods, too.

  If you can't find anyone who can diagnose him in your area, National Jewish Hospital in Denver might be a place where they can get to the bottom of this.  They see people on an out-patient basis and have comprehensive groups specialists who are used to seeing the most complicated, rare, and difficult cases in the world.  

  People (adults and children) fly in from all over the world, as it is a premier institution for diagnosing and treating immune and auto-immune diseases.  I had mastocytosis for 16 years, saw specialists at several major medical centers, and National Jewish diagnosed me in one day.  Although it's expensive to fly somewhere, sometimes it's cheaper than going to many doctors and through many tests and not finding any answers.

  Good luck.  I hope this can be diagnosed soon!

Title: Re: Ultram/tramadol
Post by sherry on 05/29/11 at 17:17:39

HI Joan,
 I have not met you yet so thanks for the response. I have forgotten about pedialite,...I tried the gatorade but the sugar bothers him I think. Yes, I have started him on zantac and Alegra along with some baby asprin(entric coated).I dont know how long before I would see results. I just added the Alegra today, the others along with a good probiotic(for years) I stared last Sunday.
  I tried gas-x ,did'nt do too much. The elemental diet from his Immnuologist was a good idea. We saw her last week and she gave us a drunk that made him really sick, cant take it. It was lactose free, wheat free and still yucky tasting and made him react in pain.
   I guess at this point , I am not sure what he has, the fever concerns me but nobody else seems to think much comcern for it., at least not the immunologist, gastrologist. After reading more blogs I have come to understand that the breakouts on the dermis  dont have to be on the skin, they  can actually occure in the intestinal tract suggests my sons Immunologist. Interesting. Flu like symptoms, nausea, food reactions starting to build more and more yet no diahrea, if anything the opposit. strong lower abdominal pain for months though,.............dont know.
  Thank you for the suggestion for the Hospital in Denver. Always wanted to go there. We would have to win the lotto for that . Anyone you would suggest there? That's wonderful that you were diagnosed in one day! I certainly have felt the frustration of not having a diagnosis. I am trying to play catch up now with 5 months of homework in order for my son to pass this year. Lots on the plate as they say. Thanks so much, I really am so blessed that I have found this site and forum. Hope to learn alot more.

Sherry

Title: Re: Ultram/tramadol
Post by Lisa on 05/30/11 at 02:08:59

Sherry,

There is a doctor we've recently become aware of, Dr. Afrin in South Carolina.  One of our members has recently seen him, Jared. She's from the south of Florida.  Send her a PM and ask her for his contact information.  He's recently published a report which shows that he's right on top of the MCAD diagnosis and this is where your son might be.  

Part of the problem you are facing, Sherry, is that you've got to have doctors who have done a workup to rule out other things, for there ARE other possibilities.  I would think the Dr. Afrin would know how to do this, but until it's been done, you, as the parent MUST keep your mind open even though you feel convinced that by the symptoms that masto is the problem.  There are things that mimic masto  - for example, a histamine interlerance syndrome would provide many of the very same symptoms as masto not because your son has too much histamine, but that his system can't deal with the normal quantities he has, thus producing many of the same symptoms.   So, you see, it's very complecated working with masto patients - there are issues that must been seen and only a doctor who really knows masto will know what they are.  So, although you've gone to plenty of good doctors, you need a specialist and that's going to take some travelling and pinching of pennies to get those answers - something we all eventually come to the realization of as being necessary for us to get appropriate treatment.  I work with my local doctors up to a point, but if we need real answers, I have NO CHOICE, and we MUST travel!!!!  This is how it is living with a rare disease.


As to the fever, Sherry, it may indeed be nothing.  If your son does have masto, then it is well known that the mediator release of prostaglandins is behind the fever!   When I have been stressed too much I've gotten a fever.  I had one last week.  It's not due to any infection whatsoever.  It appears in the evening and is gone the next morning.  There's no achiness with it, at least not for me, and no flu or cold symptoms, at least not for me - just very cold and sensitive feeling and a low grade fever.   It may be different for another patient, however.   It was Dr. Castells who told me that yes, masto patients can run fevers for no reason other than the prostaglandin D2 mediator release.  An aspirin should resolve that, I should think  - not tylenol or another NSAID for it is  aspirin which is a blocker for Prostaglandins and tylenol will not do this.  

I hope this helps.

Lisa

Title: Re: Ultram/tramadol
Post by sherry on 05/31/11 at 17:32:53

Lisa,
  Thanks for the information. At this point the Immunologist is running several blood tests, including the one for masto. I am not sure what it is at this point.All I know is my son is in pain and alot of it. The zantac and the alegra really have not done too much for him yet,it's been a week now. How long before it should work do you think?I tried baby asprin ,enteric coated and it seemed to make the pain worse, I tried them twice and both times he eneded up saying don't give me those Mom, they hurt me more.
    I could not find the girl you told me about with the Dr. in South Carolina. I was wondering about Orlando? I am only 2 hours from there too. One thing I wanted to say is my son for the last 3 days says his legs and back are starting to itch him now. He never had itchy problems before. I tried some citrazine tonight and it seemed to calm it down. then the stomach and lower intestinal pains, always below the belly button. I can see it swell and extend, it is inflamation of some sort. It does seem like sweet foods cause pain too , even though the alcat blood test showed no reaction to sweets. I can tell you chocolate will put him in pain for 3 days and I mean terrible pain. He never gets chocolate, ever.
    I was interested in what you said about a histamine overload in his body, is there someplace I can research that? I have that myself, too many histamines, I take citrazine. When the Dr. scratched my sons arm last week , he broke out to in a red mark right after she did it, I though that was normal since I was that way.
  any ideas ,please fell free, is there anything for the pain over the

sherrycounter?

Title: Re: Ultram/tramadol
Post by goldielove on 06/03/11 at 09:32:23

I just wanted too add that when my son who was 17 at the time and had chronic Hives and had a high CU index that at the time was the test for mast cells, he saw a DR at celevland Clinic Weston florida who was a great help too him at the time I might see him for myself but wanted to start with a hematologist but if that is close too you let me know I can give you his name he is an allergist immunologist

Title: Re: Ultram/tramadol
Post by DeborahW, Founder on 06/03/11 at 16:21:05

Hello everyone!

This thread, while very informative, is all over the place with subjects. This will make it very difficult for people who have similar concerns to find your discussions if you do not start a topic with a clear topic.

So, please start a new topic (feel free to copy over your post from this topic). This thread should ONLY be discussing Ultram/tramodol.

Thank you! :)

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